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Informedness of parents and family members of pediatric patients about lymphedema
Langerová, Kateřina ; Tomová, Šárka (advisor) ; Nikodemová, Hana (referee)
This bachelor thesis "Informedness of Parents and Family Members of Pediatric Patients about Lymphedema" focuses on the informedness of parents (caregivers) of a pediatric patient about the lymphedema disease. The goal of the work was to determine the state of informedness of parents and family members of a pediatric patient in the area of lymphedema and the dependence between this informedness and some parameters of the researched group and various types of information. A non-standard questionnaire of an own construction was chosen as the research method. The questionary was distributed in paper and online form through specialized healthcare facilities and through private Facebook groups focusing on lymphedema. 59 questionnaires were included in the survey. The results of this survey showed that the respondents' informedness is at a good level, regardless of the respondents' education and the time since the first symptoms of the disease. The Internet, next to specialized medical deparments, was identified as one of the most important and most frequent sources of information by the respondents. On the contrary, the respondents called media such as magazines, newspapers and television, educational materials, professional literature, but also general practitioners for children and adolescents as less...
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The effect of a child's hospitalisation on the whole family
Lejnarová, Andrea ; Průšová, Kateřina (advisor) ; Nikodemová, Hana (referee)
The bachelor thesis deals with the hospitalization of a child and all the factors that affect other family members in connection with the child's admission to a medical facility. The theoretical part of the thesis focuses on the child, the perception of illness, the impact of hospitalization on the child, as well as on the family, siblings and cooperation with medical staff. The empirical part is based on a quantitative research investigation and analysis of the data collected. The aim of the empirical part was to find out whether the child's hospitalization affects the family, family life and siblings. A quantitative research method was used using a non-standardized questionnaire of own design, which was intended for parents of children hospitalized in pre- selected wards of Motol University Hospital. 123 completed questionnaires were included in the actual survey. The reserch results of the survey show that parents of hospitalized children do not have sufficient support from the medical staff. The greatest support is provided by the family, which also provides help in the home and with other children. In conclusion, after evaluating the data collected, I believe it is important and could be beneficial to explore this issue in more detail. The results of the investigation will be forwarded to the...
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Deciding on alternate care
Krejčí, Simona ; Janoušková, Anežka (advisor) ; Dvořák, Jan (referee)
Deciding on alternate care Abstract The aim of my master thesis on the topic "Deciding on alternate care" is to analyse the decision- making of courts and the criteria that influence the assignment of a child to alternate care in the Czech Republic. The aim is not only to assess to what extent these factors and criteria are in the interest of the child, but also to what extent they must be fulfilled in order for this institution to be used with regard to the needs of the children themselves. At the same time, I also discuss the biggest problems that accompany alternate care. This thesis is divided into seven parts. In the first part, I define the basic concepts related to alternate care and also discuss the forms of post-divorce child care. The forms of post- divorce care are sole custody of one parent, joint custody, alternate custody and entrustment to another person. In the second part I describe the development of alternate care in the Czech Republic. In the third part, I focus on selected case law of the Constitutional Court, which specifically concerns alternate care and its pitfalls. The case law of the Constitutional Court is very important in this respect. In the fourth part, I describe in depth the so-called four-stage test of suitability, which was formulated by the Constitutional Court in order...
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Planning of future in families with a child with intellectual disability
Gažiová, Magdalena ; Mužáková, Monika (advisor) ; Němec, Zbyněk (referee)
This work deals with the issue of future planning in families with a child with mental disabilities. The theoretical part outlines the definition of a family, the specifics of families with a child with mental disabilities, social services for adults with mental disabilities, and the specifics of future planning for people with mental disabilities. Within the practical part of the bachelor thesis, the methodology of the chosen approach is defined, and the results of the research survey are interpreted. The aim of the work is to find out how families with a child with mental disabilities approach future planning. The chosen research method is semi- structured interviews with ten respondents. The testimonies of parents and siblings of children with mental disabilities provided insight into the approach to future planning, the difficulties associated with this topic, and the unique stories of individual families.
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Family of child with an intellectual disability
Kasíková, Eliška ; Šiška, Jan (advisor) ; Mužáková, Monika (referee)
The topic of the bachelor thesis is family of a child with intellectual disability and the aim was to find out how the birth of a child with intellectual disabilities affected the life of his family and how the family experienced this situation. The thesis consists of a theoretical and a practical part. The theoretical part is devoted to an introduction to the issue of intellectual disability. It also deals with the topic of family, the birth of a child with intellectual disability and the process of its acceptance. It also looks at the changes in the lives of families of children with intellectual disabilities. The practical part is a qualitative research that explores the experiences of mothers of children with intellectual disabilities. Data was collected using semi-structured interviews and then analysed using interpretative phenomenological analysis. The result of the thesis is an interpretation of the experience of mothers of children with intellectual disabilities and the lived experience of caring for their child. KEYWORDS intellectual disability, care of a child with intellectual disability, parents of children with intellectual disability, family, experience of parents of children with intellectual disability
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Parents' evaluation of complex care for neurologically impaired children
Mazánková, Barbora ; Nováková, Tereza (advisor) ; Stupková, Michaela (referee)
Title: Parents' evaluation of complex care for neurologically impaired children Objectives: Thesis aims to assess parents' views on the complex rehabilitation care provided to their children with neurological disabilities, or to point out deficiencies in the multidisciplinary approach to therapy. Methods: Both qualitative and quantitative methods were combined in the form of a mixed methods research. The qualitative part included semi-structured interviews with 8 families. These interviews were aimed at gaining a deeper understanding of the parents' perspectives regarding the care provided for their children. A core set of questions provided a framework for discussion and provided the possibility of further focusing on specific themes as needed. Data were segmented and coded into units that were compared with each other within an embedded theory framework. The quantitative analysis involved an online questionnaire which contained both closed and semi-closed questions. This questionnaire was completed by a sample of 62 families. It was developer using the Click4Survey tool allowed for comprehensive implementation and evaluation of the responses. Relative frequency was used for statistical data analysis. Results: The qualitative part of the study provided detailed understanding of parents'...
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Relationships in the family of a child with combined disability
Krausová, Natalie ; Hájková, Vanda (advisor) ; Mužáková, Monika (referee)
The bachelor's thesis deals with the issue of relationships in the family of a child with a combined disability, it also deals with the economic and social situation and the impact of the child's disability on siblings and the extended family. The theoretical part contains three chapters. In the first chapter, the term "combined disability", its types, social services supporting families with combined disabilities and individual types of disabilities are defined: developmental brain disorder, SYNGAP, autism spectrum disorder, epilepsy, cortical visual impairment, ADHD, which are reflected in my research part of my bachelor's thesis, and I also mention other types of combined disability (Down syndrome, cerebral palsy). The second chapter is focused on the term "family", where I describe the functions, signs, and types of family. The third part of the bachelor's thesis is devoted to the description of interpersonal relationships, partner relationships, sibling relationships and how these relationships are affected by a child with a disability. The extended family is also mentioned here. The practical part of BP deals with the research of relationships in the family of a child with combined disabilities. Among the research methods, I included multi-case studies and semi- structured interviews, which I...
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Families of gifted children with ADHD
Němcová, Hana ; Kadrnožková, Monika (advisor) ; Marádová, Eva (referee)
This thesis is focused on the topic of twice-exceptionality in children of school age. It deals with the specifics of gifted children with ADHD. The theoretical part defines basic concepts such as giftedness, intelligence, twice- exceptionality and ADHD. It describes the specifics of diagnostics and care of gifted children with ADHD. In the empirical part qualitative research using case study design was carried out. Parents of twice-exceptional children were chosen as respondents. Obtained data was analysed using the methods of open coding, thematic analysis and cross-case analysis. The results of research show that according to parents it is effective to implement structured environment and to use rewards as means of motivation. Parents approach caring for their children actively and responsibly. According to parents, effective communication with school is a very important aspect of their children's education. This communication happens to be problematic in some cases and some parents require teachers to use more active approach to problem solving. Parents use many resources to self-educate themselves on the topic of twice-exceptionality, most often books, articles, studies or podcasts. They also gain information from other parents of gifted children with ADHD, using either online communication or meetings...
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