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Patient organisation from the perspective of patients and health care professionals - how we can enrich each other. Participatory research in urology patient care
Novotná, Hana ; Povolná, Pavla (advisor) ; Hradcová, Dana (referee)
This thesis focuses on the development of a patient organization for prostate cancer patients to link the medical system to the needs of patients and their loved ones. The research involved mapping the needs of patients and healthcare professionals through qualitative interviews. Findings suggest that patients evaluate their experience of the disease primarily through treatment and contact with health professionals, with communication with doctors playing a key role. However, the healthcare system still shows deficiencies in communication and information provision, thus not providing enough support to patients. At the same time, health professionals are found to be poorly informed about patient organisations, but with a willingness to cooperate in the future. In order to make the change, two sets of conditions were defined. Realistic conditions for the successful use of patient organisation services include informing patients and health professionals about their existence and activities, and actively encouraging patients to seek information. Idealistic conditions include a change in the perception of gender roles in society and greater involvement of patients in shaping the health system. The paper proposes steps to achieve these conditions, including the presentation of research findings and...
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Information Support for Patients with Multiple Sclerosis in the Czech Republic
Houdková, Tereza ; Kocianová, Renata (advisor) ; Kopecký, Martin (referee)
This bachelor thesis discusses information support of patients with multiple sclerosis, their families and the public in the Czech Republic. The first part of the thesis describes the disease multiple sclerosis itself and depicts the development of information support in the Czech Republic in comparison with the development in the world. It also presents various Czech organizations that deal with this disease, and their activities, including evaluation of the methods and extent of information that these organizations provide. The second part of my thesis contains an analysis of the level of information support according to several factors. I solved the selected topic using text analysis. The result is a comprehensive description of Czech organizations (MS Centre, Unie Roska, etc.) and their activities, which benefits not only the patients with this disease. KEYWORDS Multiple sclerosis, patient organization, information service, patient education, informing the patients, content analysis
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The Communication Strategy Proposal for the National Association of PKU and Other Inherited Disorders
Kusáková, Iva ; Lhotáková, Markéta (advisor) ; Puda, Radek (referee)
The diploma thesis focuses on the National association of PKU and other inherited disorders. Within the theoretical part the non-profit sector is defined, the theoretical basis for marketing communication are determined and successful communication campaigns of non-profit organisations are introduced. The main goal of the diploma thesis is to suggest the communication strategy for the National association of PKU and other inherited disorders. The main goal of the diploma theses is supported by own research in the form of in-depth interviews and survey which were answered by PKU patients. Finally, the communication strategy proposal is created, which target is to raise awareness about PKU among the general public.
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