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Involving users in the psychiatric care reform
Wolfová, Magdaléna ; Tušková, Eva (advisor) ; Dobiášová, Karolína (referee)
The subject of this diploma thesis is the involvement of users of psychiatric care in the process of planning and realization of psychiatric care reform at the macro level of policy making. The aim of the research is to describe and understand this involvement. In the research are describer possibilities of participation in the phases of involvement, its form, purpose, formal regulation of opportunities, expectations of respondents, perceived power and barriers in involvement. The data was collected during interviews with key actors and studies of relevant documents. The results relate to the theoretical concepts of coproduction, patient-oriented care, strategic and human rights documents (the Convention on the Human Rights of People with Disabilities). The element of power is described through the typology of Sherry Arnstein's participation ladder. Evidence of interviews indicates elements of tokenism and disadvantages. There is a low (one-person) representation of users in reform bodies, lack of time for discussion in consultative bodies, lack of information and lack of capacity (people, time, resources) for greater development of patient organizations. Respondents have identified barriers as the socio-economic situation, lack of capacity for macro-level involvement, mental health constraints or...
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Civic engagement and health care system
Černá, Anna ; Numerato, Dino (advisor) ; Hasmanová Marhánková, Jaroslava (referee)
The diploma thesis focuses on impact of civic engagement on health care system. It studies to what level this participation helps health care system transformation and change of a relationship between patients and political and professional authorities. It's aim is to provide a critical sociological analysis and explain social processes accompanying patients' engagement by using examples. Patient organisations - an institutionalised form of civic society with a potential to evoke social change - get into scope here. The ambition of this thesis is to show the applicability of the reflexivity concept to the area of health care, to enrich this analytical framework by multilevel approach to the health care system and therefore add to the discourse around civic engagement phenomenon by a systemic and structured view of dynamic relationships between patient organisations and health care system. The findings of the author are based on an analysis of semi-structured interviews with patient organisations representatives and available documents. The author emphasises the ambivalent impact of civic engagement which on one side reinforces individual transformations of micro, meso, macro and meta levels of health care system and also acts as a catalyst of wider sociocultural changes. On the other hand, it is accompanied...
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Involving users in the psychiatric care reform
Wolfová, Magdaléna ; Tušková, Eva (advisor) ; Dobiášová, Karolína (referee)
The subject of this diploma thesis is the involvement of users of psychiatric care in the process of planning and realization of psychiatric care reform at the macro level of policy making. The aim of the research is to describe and understand this involvement. In the research are describer possibilities of participation in the phases of involvement, its form, purpose, formal regulation of opportunities, expectations of respondents, perceived power and barriers in involvement. The data was collected during interviews with key actors and studies of relevant documents. The results relate to the theoretical concepts of coproduction, patient-oriented care, strategic and human rights documents (the Convention on the Human Rights of People with Disabilities). The element of power is described through the typology of Sherry Arnstein's participation ladder. Evidence of interviews indicates elements of tokenism and disadvantages. There is a low (one-person) representation of users in reform bodies, lack of time for discussion in consultative bodies, lack of information and lack of capacity (people, time, resources) for greater development of patient organizations. Respondents have identified barriers as the socio-economic situation, lack of capacity for macro-level involvement, mental health constraints or...
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Advantages and disadvantages of membership of organizations in the Czech Association for Rare Diseases (CAVO)
Stránská, Markéta ; Navrátil, Jiří (advisor) ; Moree, Dana (referee)
In my work, I want to focus on the perceived advantages and disadvantages of membership in the umbrella organization. This topic, I will discuss from the perspectives of the member organizations. This is a specific segment associations - the patient organizations focused to patients with rare diseases. It is clear that cooperation in the umbrella organization brings advantages, but it is probable that it can also bring some disadvantages. For my work I choose the Czech Association for rare diseases. In the Czech Republic is the only organization in the civil sector, focusing exclusively on rare diseases. The goal of the master thesis is to find out the perceived advantages and disadvantages, and how it is related to the level of activity of members of the umbrella organization. Further, I want to compare the data with the theoretical literature in order that differs. Theme of umbrella in the Czech Republic is almost unexplored. There are only a few expert papers in this area. That's why I decided to focus on cooperation in civil sector (organization focus on rare diseases), which is relatively unknown. Keys words: advantages of cooperation, disadvantages of cooperation, rare disease, advocacy function, information function, umbrella organizations, patient organizations, Czech Association for Rare...
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Activities of NGOs in the Care of Patients Diagnosed with Breast Cancer
Pecháčková, Tereza ; Křížová, Eva (advisor) ; Pospíšilová, Tereza (referee)
This dissertation is focused on medical care field, introduces common issues of oncology illnesses. Presents the system and particularity of women's breast cancer care and looks into patient's rights and importace of foreknowledge. Also presents activities of non-state nonprofit organization focused on this sphere. The aim of this dissertation is to map involved organizations and analysis of their work. Investigates foreknowledge of patients about knowing of them and also finds topics of their intersect. Key words oncology diagnosis, breast cancer, patients organizations, prevention, second opinion, health service, non-profit non-govermental organizations, information asymmetry, mammography screening, informační asymetrie, mamografický screening
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Rheumatoid arthritis versus ankylosing spondylitis from the view of dependence to social network
JELENOVÁ, Michaela
The number of rheumatic diseases has been increasing in Europe. It is estimated that currently up to a quarter of Europeans suffer from some type of rheumatism. Rheumatoid arthritis and Bechterew's disease (ankylosing spondylitis) are chronic diseases manifested by pain, stiffness, inflammation of joints and the back. The theoretical section is divided into two parts; the first part defines rheumatoid arthritis and Bechterew's disease from the health point of view. The second part is devoted to the social area that is often neglected. The aim of the practical section of the thesis is to reveal how rheumatoid arthritis differs from Bechterew's disease in terms of the use of social assistance, as well as employability or participation in social life. For the data collection, qualitative research methods and interviewing techniques were used. The addressed respondents were patients of rheumatology consulting rooms of the Medipont Plus Ltd., who were divided into two groups ? patients with rheumatoid arthritis and those with Bechterew's disease. The research has shown that persons suffering form rheumatoid arthritis are more likely to get a disability pension than those with Bechterew's disease and they also more often use social contributions, most frequently the extra benefits for people with disabilities ? ZTP cards. This is related to a lower work capability in patients with rheumatoid arthritis compared to those with Bechterew's disease. The research results are influenced by the age of the respondents, the length of the illness, the difference in the roles of men and women and last but not least, by personality characteristics. The research has proved that patients suffering from rheumatic diseases as well as those suffering from Bechterew's disease and undergoing biological treatment are more self-sufficient due to this modern treatment. It has also been found that the respondents who are not fully self-sufficient are not informed about the possibilities to get social benefits and contributions and do not know where to get this information. The thesis could provide an impetus for the strategy when rheumatic diseases are not considered only a medical issue, because these diseases significantly influence the lives of the people affected and thus become a serious psychosocial issue.
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Co-operation of Nurses with Selected Support Groups
SCHRIMPFOVÁ, Pavla
The Bachelor?s Thesis was focused on co-operation of nurses with selected support groups. Four objectives were set. Objective 1: To find out the nurses? awareness of any support groups. Objective 2: To find out if the nurses co-operate with the support groups. Objective 3: To point out to the nurses? collaboration with the support groups. Objective 4: the selected support groups representatives? opinion on their co-operation with the nurses. A quantitative and qualitative investigation was chosen for the purpose of data gathering. The quantity examination was done by questioning method using a way of questionnaire, the quality one was carried out by questioning method using a way of non-standardized dialogue. Two hypotheses and 2 research questions were defined. Hypothesis 1: the nurses are informed about the existence of support groups, it was confirmed. Hypothesis 2: the nurses co-operate with the support groups, it wasn?t confirmed. Research question 1: How do the selected support groups? representatives perceive present co-operation with the nurses? Answer: The nurses? collaboration with support groups differs from according to a particular support group. Representatives of Diabetic Union of the Czech Republic, Local Unit Plzeň evaluate their collaboration with nurses to be ideal. The nurses do lecturing for the Union, they conduct special discussions and take part in meetings in which they provide blood pressure, glycaemia, cholesterol measuring with concerned people. Further, the nurses participate in a Dia-Club operating, they act educationally in re-conditional stays offering sick people any contacts to the Diabetic Union, the Dia-Club and hand over any information brochures. The Breast Carcinoma Patient Association?s representatives - MAMMA HELP CENTRE Plzeň state the nurses don?t collaborate with them at all. Representatives of ILCO Colostomy Patients Association Tábor point out to a fact that only one specialised nurse collaborates with them, she provides contacts, lectures in the colostomy club, she ensures and hands over compensating aids and conducts chatting. Research question 2: What conception do the selected support groups? representatives have as to possibilities of further co-operation with nurses? Answer: The representatives of Diabetic Union of the CR, Local Unit Plzeň wouldn?t change their present co-operation anyhow. The representatives of MAMMA HELP CENTRE Plzeň state the nurses should provide contacts and information about the association; they should show interest in its activity, visit the centre, do lecturing for sick people here and participate in events arranged by the association. The representatives of ILCO colostomy patients Association Tábor state the nurses should provide information about the association with sick people; they should show interest in its activity, participate in arranged events and be engaged more. There is a recommendation for actual setting to create an information leaflet listing of patients? organisations whim them the support groups are effective and this leaflet should be provided with hospital facilities Hospital České Budějovice a.s. and Faculty Hospital Plzeň. Another occasion to make use of gained information might be a seminar arrangement for nurses within life long learning.
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A client with non specific intestinal inflammations in community care
DOLEŽALOVÁ, Jana
Non specific intestinal inflammations, including Crohn´s disease and ulcerous colitis, belong to so called civilization diseases. Their cause is not completely clear. There is a common factor of both the diseases, that they attack mainly young people between 20 and 30 years of age. These diseases affect mainly physical, but also mental and social aspects of client´s lives. A client needs to have sufficient information on his/her disease and its treatment to be able to cooperate with medical staff actively and thus contribute to improvement of his/her health condition. A nurse plays an important role here as well. Nurse are those who are in permanent contact with a patient and patiens often ask them questions they would be embarrassed to ask a physician. Support of family and friends is also of great importace. Patient organizations that support and help patiens suffering from non specific intestine inflammations and also support their family members may also play an important role. The aim of the bachelor thesis is to find out how patiens with non specific intestine inflammations may benefit from patient associations, to find out how nurses participate in keeping the clients informed and to compile material for clients with non specific intestine inflammations. The qualitative research method was used in the practical part of the thesis. Data collection was performed by means of a semi-structured interwiew. The research sample consisted of selected clients with non specific intestine inflammations, members of IBD CROCODILE Club České Budějovice, participants of seminars of CroCus Patient Club České Budějovice and a civil association of patiens with idiopathic intestine inflammations in Prague. Case studies were elaborated upon interviews with the indiviual respondents. The case studies formed a base for categorization tables in which the most important research results were summarized. Apart from the set goals the research results showed problems the patiens and thein families have to cope with on daily basis. The disease has the most serious impact on their lives in the fields of nourishment, physical activities and travelling. The elaborated information material may be used in seminars of patient organizations, but also in classes at medical school. The research result might be published at specialized lectures and conferences.
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