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Quality of life of a child with a rare skin disease
KOUBOVÁ, Michaela
This diploma thesis deals with a rare skin condition called Ichthyosis which is, for the majority of the population, unknown. It is a rare genetic disease that is manifested via a different skin look and a bad bodily thermoregulation. The aim of this thesis is to map out the specific needs in the lives of children suffering from this disease and to point out the aspects of life quality for children thus diagnosed and their families, too. The theoretical part deals with the history, diagnosis, symptom description, the causes of origin as well as care for an individual suffering from this illness. To fulfil the aims of the practical part qualitative research was chosen in the design of a case study focused on a description of complex care and subjective understanding of quality of life in addressed individuals suffering from the given illness and their families.
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Possibilities of multidisciplinary cooperation in the field of solving pediatric feeding disorders
Bodečková, Denisa ; Povolná, Pavla (advisor) ; Čajko Eibicht, Monika (referee)
This thesis deals with the problem of pediatric feeding disorders. It brings the unique experience of formal and informal caregivers of children with feeding difficulties. The aim of the thesis is to describe the current management of pediatric feeding disorders and to identify the possibilities of multidisciplinary collaboration among health and social care professionals. The partial goal of the work is to describe and compare pediatric feeding disorder in different contexts, to identify the roles of individual professions and other actors in solving this problem and, last but not least, to identify needs based on specific people's experiences. This thesis is processed by the method of interpretive phenomenological analysis. The theoretical part defines the term pediatric feeding disorder and related terminology with reference to the International Classification of Diseases and Related Health Problems. It also focuses on the possible causes of the disorder, its prevalence, and socio-economic impacts. It presents the role of health and social care professionals. Attention is paid to the methods and possibilities of child and family support and the accessibility of care in the Czech Republic and abroad. The empirical part presents the experiences and needs of formal and informal caregivers of...
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Person with Teacher Collins syndrom in context with coordinated care and quality of life, case study
KOUBOVÁ, Michaela
Bachelor thesis deals with the issue of Treacher Collins syndrome. Treacher Collins Syndrome is a rare genetic disease that is distinctly manifested by deformities in the face. Due to the different appearance and ignorance of the syndrome, it is difficult, for the public, to integrate individuals into society. These factors impede the mental well-being of both the individual and his family. This work is divided into theoretical and research part. In the theoretical part, the subject of this syndrome is elaborated based on relevant sources, so that the reader be well versed in this issue. It deals with the definition of Treacher Collins syndrome, its history, description of symptoms, and causes. The thesis also mentions methods of prenatal diagnosis and the development of such an individual. The next part focuses on comprehensive care of individuals. It includes special pedagogical care, health and social care. It deals primarily with the education of individuals, surgical interventions, compensatory aids, and the integration of individuals with Treacher Collins syndrome into society. The research part consists of a case study of a specific individual with Treacher Collins syndrome and his family. This part has been aimed to obtain and process information concerning the state of health, personal and family case history, available medical care, education, interests and life quality of the individual and his family. An in-depth interview and analysis of specific documents were used to obtain data. The research revealed a lot of interesting information. It turned out that the quality of life is influenced by levels of parental competencies, quality of health care, and the functionality of integration into the education system.
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Analysis of interdisciplinary approach to children with orofacial clefts
Novotná, Kateřina ; Korandová, Zuzana (advisor) ; Klenková, Jiřina (referee)
The topic of this diploma thesis is an analysis of interdisciplinary approach to children with orofacial clefts. The first chapter deals with theoretical base and defines terminology - communication, communication disabilites. It also defines anatomy and physiology of nasal cavity and oral cavity. The second chapter relates to issues of orofacial clefts. It describes classification, etiology, symptomatology, prevention, aestetic and psychosocial impacts and orofacial cleft children care. The third chapter deals with occurence of communication disabilites of children with orofacial clefts. It focuses on the definition of palatholaly, velopharyngeal inadequacy and it describes various linguistic levels and speech therapy and intervention. The fourth chapter is empiric and it deals with analysis of interdisciplinary approach to children with orofacial clefts. In research processes there were used scientific literature analysis, anamnestic data analysis and available specialized materials analysis. Based on all of these materials six case studies were created. Main goal of this empiric chapter was to analyze interdisciplinary approach to children with orofacial clefts. Partial goals were to analyze whether information provided by experts and doctors to parents of newborn children with orofacial cleft...
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Comprehensive care for seniors in hospital
HRÁDKOVÁ, Lenka
This bachelor thesis deals with the issue of Comprehensive care for seniors in hospital. The conception of this thesis is theoretically-empirical. The theoretical part is focused on the characteristics of old-age and changes that accompany it, on the concept of comprehensive care, workers who participate in complex care and comprehensive care in hospital reception and hospitalization. Subsequently, it is oriented towards peculiarities concerning communication with seniors, the nurse´s role in satisfying seniors´ needs, the family as a part of care for seniors, and senior health-care in hospital facilities. The empirical part includes a research which was done via a qualitative approach, a questioning method, a semi-structured observation technique with nurses and seniors in the Aftercare Ward. The information obtained was noted in written form, and subsequently rewritten and organized, via a pen-paper method into categorizing groups. In relation to the research, three aims were chosen. The first aim was to find out how nurses conceive comprehensive senior care. The second aim was to find out how comprehensive senior care is being fulfilled by the nurses. The third aim was to find out what aspects of care offered by nurses are missed by the seniors. Six research questions which were being answered during the research were added to these aims. The research has shown that nurses have proven comprehension and knowledge of the terms ´comprehensive care´ and ´multidisciplinary team´. Comprehensive care is implemented by nurses already when receiving introducing the patient with the ward in regard to their health condition. Further on, they take the patients´ anamnesis from them, and they evaluate their health condition via evaluating tools which are being updated and further evaluated during the hospitalization. It was found out that nurses emphasize ensuring biological, psychological and social needs. Aspects of comprehensive senior care which are being missed by nurses have emerged from the nurses´ and patients´ interviews. Nurses do not sufficiently fulfill the autonomy need, and in social needs it would be suitable for nurses to lay out more time for communication with patients. The research has further proven that spiritual needs are not being fulfilled. The seniors´ answers were different from those of the nurses, and the results prove clearly that these needs are not being fulfilled by the nurses. Having been asked about what aspects in care the seniors are missing, they answered that they were happy in the ward. They agreed to the nurses´ results, saying that they would welcome a greater emphasis on keeping privacy, and complete room equipment. They equally agreed on the insufficient staff numbers.
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Keeping oral hygiene while taking complex care of seniors
ŠTĚCHOVÁ, Pavla
The topic of this bachelor thesis is Keeping oral hygiene while taking complex care of seniors. Count of seniors that have dental problems or don't have teeth at all increases according to specialized literature (Pacovský, 1994). The most frequent causes of that are growing motoric and cognitive issues at the old age but also increasing dependency of the hospitalized seniors on the nursing staff. Oral hygiene is also often done incorrectly (Kubíčková, 2012), or in a minimal scale only. Having poor oral hygiene can lead to a variety of problems, e.g. tooth decay, tooth plaque or tartar (Preclíková, 2015). This bachelor thesis has two targets. The first one is finding differences in oral hygiene practising at mobile, partly immobile and completely immobile seniors and the second one is finding reasons for poor oral hygiene at seniors. Based on these two targets, three research questions were established. The first one is: What differences are there in good oral hygiene practising at mobile, partly immobile and completely immobile seniors? The second research question: What are the reasons for these differences in good oral hygiene practising at seniors? The last, third question: How is oral hygiene practised by nurses at mobile, partly immobile and completely immobile seniors? The research part of this thesis uses qualitative research method. To get necessary data for further processing of the research part of this thesis, the participant observation method was used. The observation was done in various wards of medical institutions in the South Bohemia Region. The observed data is recorded in recording sheet (Appendix 1). It is processed by coding method and divided into seven categories and several subcategories. The second part of the research uses method of unstructured and semi-structured interviews with patients seniors, to complete and verify collected data. Each interview is recorded with agreement of patients and its transcript is documented (Appendix 2). Collected data is encrypted according to internal similarity of particular codes that are marked in colours in the transcripts (Appendix 3). Results of this research show that the lowest quality of oral hygiene is provided to immobile patients seniors. The results also show differences in provided care in each of the observed wards. Regarding the fact that this thesis is based on my experience with poor oral hygiene, I found out that the conclusion indicates oral hygiene practising at patients seniors, but the quality, level and scope are lower than they should be. The thesis reveals also other lacks that should have higher importance and should not be ignored.
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Implementation of hospice fieldwork
PFLEGROVÁ, Petra
This work deals with the idea of dying patients in the terminal stage at home. In the theoretical part I describe the concepts relating to the care for the dying and dying itself, as well as the potential risk of marginalization, which is associated with dying. Furthermore, the mention of palliative care in the form of a mobile hospice, with its multidisciplinary team that should try as far as possible to avoid marginalization. There is also the issue of euthanasia, in contrast with the use of palliative care. Hospices are the last topic in the theoretical part, the history and current state of hospice fieldwork. In the practical part I try to determine through research if and how mobile hospice avoid marginalization. Another aim of the research was to map the motives of the workers in hospice care, identify their goals and the problems they must overcome.
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Comunication of Auditory Disabled Children within the Educational Proces
TRMALOVÁ, Hana
This project focuses on the comunication of auditory disabled children within the educational process. This project is divided into two section. The first part is theoretical and describes the kinds, levels, diagnostics, compensatory tools, ways of comunication and education of auditory disabled people. For this task was used scientific literature listed on the page n. 68 of this project. The practical part was being done in form of questionnaire and a research at special schools. The questionnaire was given to the teachers who teach there. The goal of the research was to find out what the most used way of comunication of auditory disabled children is and how those children learn.
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