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Needs of parents of children with multiple disabilities at an early age fot individualized early intervention
Vencová, Barbora
Introduction: The arrival of a child with multiple disabilities (MD) in a family is a difficult situation. Increased stress of parents of (MD) is often related to the non-fulfillment of the needs, leads to frustration and deprivation that can result in serious health problems. The aim is the subjectively defined and described life with a child (MD), focusing on the needs of these parents resulting from the daily care of the child. Aim: Identify, describe and analyze the needs of parents of children with MD at an early age. Methods: Qualitative approach using the biographical narrative method. The research design is a case study. Methodological triangulation: three methods of collecting data: biographical curve, in-depth interview, Cantril's ladder. Results: all cases were compared with each other. 12 parents' needs were identified. The Cantril's ladder method found significantly unmet needs: Need for rest and Need for medical care. Conclusion: The main contribution of the work is to understand the individuality and needs of parents of children with multiple disabilities, as a possibility to provide purposefully individualized early intervention, to streamline the process of planning, implementation and evaluation of provided care and thus contribute to the quality of life of the whole family.
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Education and Development of the Child with Dual Sensory Disability from Mother's Point of View
Zvelebil, Maxmilián ; Květoňová, Lea (advisor) ; Šumníková, Pavlína (referee)
The diploma thesis deals with development and education in families with a child with dual sensory impairment, namely, from mother's point of view. The objective is to analyse stories of selected mothers of children with this particular disability, to explore the course of development and education involving deafblind children from different points of view (pedagogical, psychological etc.). The author of this thesis tries to find out about mothers' experiences and models of behaviour during pregnancy and afterwards. It focuses on acceptance of the disabled child within (and possibly outside) the family. In addition, the thesis explores reactions of mothers and others to a child with disability, it outlines the subsequent course of development and education in various periods of life. The particular emphasis is put on specific ways, by which these mothers developed their children during different activites (plays, conpensatory senses development, communication system development, independence of deafblind children etc.). It also describes developmental delays (emotional, social and cognitive functioning). Education options for deafblind are also mentioned. The stories are then compared to each other, as well as to selected literature from different countries. At the end of this thesis, practical...
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Needs of parents of children with multiple disabilities at an early age fot individualized early intervention
Vencová, Barbora
Introduction: The arrival of a child with multiple disabilities (MD) in a family is a difficult situation. Increased stress of parents of (MD) is often related to the non-fulfillment of the needs, leads to frustration and deprivation that can result in serious health problems. The aim is the subjectively defined and described life with a child (MD), focusing on the needs of these parents resulting from the daily care of the child. Aim: Identify, describe and analyze the needs of parents of children with MD at an early age. Methods: Qualitative approach using the biographical narrative method. The research design is a case study. Methodological triangulation: three methods of collecting data: biographical curve, in-depth interview, Cantril's ladder. Results: all cases were compared with each other. 12 parents' needs were identified. The Cantril's ladder method found significantly unmet needs: Need for rest and Need for medical care. Conclusion: The main contribution of the work is to understand the individuality and needs of parents of children with multiple disabilities, as a possibility to provide purposefully individualized early intervention, to streamline the process of planning, implementation and evaluation of provided care and thus contribute to the quality of life of the whole family.
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Needs of parents of children with multiple disabilities at an early age for individualized early intervention
Vencová, Barbora ; Květoňová, Lea (advisor) ; Vítková, Marie (referee) ; Bužgová, Radka (referee)
Introduction: The arrival of a child with multiple disabilities (MD) in a family is a difficult situation. Increased stress of parents of (MD) is often related to the non-fulfillment of the needs, leads to frustration and deprivation that can result in serious health problems. The aim is the subjectively defined and described life with a child (MD), focusing on the needs of these parents resulting from the daily care of the child. Aim: Identify, describe and analyze the needs of parents of children with MD at an early age. Methods: Qualitative approach using the biographical narrative method. The research design is a case study. Methodological triangulation: three methods of collecting data: biographical curve, in-depth interview, Cantril's ladder. Results: all cases were compared with each other. 12 parents' needs were identified. The Cantril's ladder method found significantly unmet needs: Need for rest and Need for medical care. Conclusion: The main contribution of the work is to understand the individuality and needs of parents of children with multiple disabilities, as a possibility to provide purposefully individualized early intervention, to streamline the process of planning, implementation and evaluation of provided care and thus contribute to the quality of life of the whole family.
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