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The quality of life of people with sclerosis multiplex
Dufková, Ilona ; Mareš, Jiří (advisor) ; Oborníková, Martina (referee)
82 Annotation Author: Ilona Dufková-Hurdálková Institution: Charles University in Prague, Faculty of Medicine in Hradec Králové Supervisor: Prof. PhDr. Jiří Mareš, CSc. Title: The quality of life of people with sclerosis multiplex Number of pages: 85 Number of attachments: 12 Year defense: 2015 Keywords: multiple sclerosis, quality of life, strategy of coping with the disease, impact of the disease on everyday life, Domov sv. Jose- fa, caring for an immobile patient. This bachelor's degree thesis presents a personal view of selected patients living with multiple sclerosis. These selected patients permanently live at the Domov sv. Josefa in the village of Zirec. For the purpose of this study only the patients at the chronic progressive stage of the disease and who were willing to talk about their life and to describe the whole progress of the illness were selected. The patients were four men and one woman (ages 50 to 80). The first theoretical part of the study describes the history of multiple sclerosis, etiolo- gy of the disease, diagnosis, progress of the illness and its treatment. It mentions institutions which help the patients cope with the disease, such as home care, social services and organi- zations that provide support to the patients. It talks about the concept of quality of life in ge- neral,...
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The quality of life of people with sclerosis multiplex
Dufková, Ilona ; Mareš, Jiří (advisor) ; Oborníková, Martina (referee)
82 Annotation Author: Ilona Dufková-Hurdálková Institution: Charles University in Prague, Faculty of Medicine in Hradec Králové Supervisor: Prof. PhDr. Jiří Mareš, CSc. Title: The quality of life of people with sclerosis multiplex Number of pages: 85 Number of attachments: 12 Year defense: 2015 Keywords: multiple sclerosis, quality of life, strategy of coping with the disease, impact of the disease on everyday life, Domov sv. Jose- fa, caring for an immobile patient. This bachelor's degree thesis presents a personal view of selected patients living with multiple sclerosis. These selected patients permanently live at the Domov sv. Josefa in the village of Zirec. For the purpose of this study only the patients at the chronic progressive stage of the disease and who were willing to talk about their life and to describe the whole progress of the illness were selected. The patients were four men and one woman (ages 50 to 80). The first theoretical part of the study describes the history of multiple sclerosis, etiolo- gy of the disease, diagnosis, progress of the illness and its treatment. It mentions institutions which help the patients cope with the disease, such as home care, social services and organi- zations that provide support to the patients. It talks about the concept of quality of life in ge- neral,...
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SUBJECTIVE VIEW ON QUALITY OF LIFE OF PEOPLE WITH MULTIPLE SCLEROSIS AT SAINT JOSEF´S HOUSE AT ŽIREČ.
KRÁLOVÁ, Inka
Sclerosis multiplex (disseminated) is a chronic inflammatory disease of the central nervous system occuring to young people mostly. This is a diagnosis that changes a person{\crq}s life entirely. The people suffering from the disease gradually become fully dependent on the other people{\crq}s help. The disease is usually diagnosed at people at the age 20 {--} 40. Domov sv. Josefa (St. Joseph{\crq}s Hospice) in Žireč provides good conditions for dignified and full-value life of the ill people, and psychical support in their fight with the destiny. The hospice is the only of its kind in the Czech Republic though the number of applications for staying here is increasing and the capacity of the hospice is not sufficient. Most people with the diagnosis of sclerosis multiplex stay in seclusion; mostly they get divorced or stay with their elderly parents. Domov sv. Josefa offers the ill people the solution of their difficult life situation. In my work I found out patients{\crq} subjective opinions on the quality of their lives in the hospice and how the people with sclerosis disseminated live in the ward of permanent residence in Domov sv. Josefa. The essay should help to increase the awareness of Domov sv. Josefa because I believe the care facilities of the kind should be more numerous in the Czech Republic. This is a way how to solve the difficult situation of many people suffering from sclerosis disseminated and how to allow them to have dignified, active and full-value lives.
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