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Specifics of nursing care for oncology patients in the terminal stage of the disease
FRANTA, Ondřej Darek
Summary This bachelor diploma thesis deals with the issues of nursing care of oncology patients in the terminal phases of the disease. The goal of the thesis is to map specifics of nursing care of oncology patients in the terminal stage and specifics of communication with these patients. Furthermore, the goal of this thesis is to evaluate how demanding it is to nurse oncology patients in the terminal stage. Methodology and research group The results were achieved by the method of questioning via semi-structured dialogues with nurses working at standard oncology departments as well as at intensive care units. The research group consisted of eleven nurses. The data was processed via open coding by method of pen and paper. The analysis of the data subsequently created three categories and eight subcategories. Results The results of the research imply that according to the nurses the most important specific of nursing care of oncology patients in terminal stage is adequate usage of painkilling medication to minimize the suffering and improving the quality of life. The next important specific is the need of patient to be in touch with his or her close people. From the communicating point of view, the research concluded that the nurses consider empathy and friendly face as key elements. Expressing support in difficult times is also very important. The nurses perceive profound awareness as the next key element to avoid possible conflicts or misunderstanding. Among other things, the research declared that the most challenging part for the nurses is the feeling of being powerless while a suffering patient is dying. Therefore, the nurses emphasize the need to separate private and working life. This separation could be understood as a precaution against burnout syndrome that is threating. The acquired data demonstrates that the nurses working in palliative care feel fulfilled when the patient's disease is in remission or when they can assist dignified passing. Results for practice The results of the research were used to create script of simulative teaching for students in the field of communication with oncology patients in terminal stage of the disease.The hope is that this diploma thesis may provide insight into specifics of nursing care of the patients in question, and it may contribute to raise awareness of this field.
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The process and role of the social worker in patients in the terminal stage of illness
PROKEŠ, Vojtěch
The thesis deals with the process and role of the social worker regarding patients in the terminal stage of illness. The first chapter of the thesis focuses on the description of palliative and hospice care, their aims, and types. The following chapter describes the terminal stage, explaining what the terminal stage is, what phases of coping with dying a person goes through at the end of life, what rights the dying person has and what his/her needs are. It also focuses on dying, death and grieving itself. The third part describes the work of the multidisciplinary team and its members. The role of the social worker is depicted in the last chapter, where it is explained what activities they perform and how they communicate with patients and team members.
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Use of the diary of nursing care for patients in the terminal stage of the disease
STEHLÍKOVÁ, Eva
The bachelor thesis deals with the possibilities of using the diary of nursing care for patients in the terminal stage of the disease. This theoretical bachelor thesis is based on research of sources taken from Czech and foreign literature, including database sources. The work focuses on general palliative care and the terminal stage and is divided into several sections. The needs of a dying person are described in detail here, both biological, psychosocial, and spiritual. The work also focuses on the dying stages, according to Kübler-Ross, which are described here in detail. The central chapter focuses on palliative communication, which is of special importance. Medical staff, including nurses, are not trained in how to talk to the family of a dying or deceased person. The following sub-chapters are devoted to the central topic of using a nursing diary for terminally ill patients abroad. The creation of a nursing diary in various countries of the world is described here in detail, as well as its acceptance in practice. It also includes a description of the diary, how it looks in certain healthcare facilities, and its possibilities. The effect of using a diary in practice on the quality of care provided is also discussed. The data show that the diary was very beneficial, especially to the families of the patients who kept the nursing diary. The diary helped families to better come to terms with the death of a loved one during the grieving process. The author's view on the issue is described at the end of the work. In response to the data, a proposal for a nursing diary in the Czech version was created to contribute to the development of palliative nursing care within the Czech Republic.
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The nurse's work in the care of the patient in the terminal stage.
LAŠKOVÁ, Vendula
The bachelor thesis submitted deals with the topic of palliative treatment of dying people. Its aim is to map the approaches used by nurses during palliative treatment of dying patients admitted either to hospitals for long-term patients (LDN) or to inpatient hospices. This work explores the differences in treatment and in meeting the requirements of these hospitals. Three research questions were identified in the present work: 1. "How does a nurse take care of patient's biological needs when he/she is effectively dying?" 2. "How does the nurse take care of patient 's psychological and spiritual requirements?" 3. "How does the nurse take care of patient's social needs?" The research part was conducted methodologically and qualitatively by using the technique of semi-structured interviews with nurses who work either in LDNs or in inpatient hospices. The interviews were steered on the basis of a prepared questionnaire. The research group consisted of a total of sixteen nurses. The interviews were recorded and subsequently typed. The gained data yielded evidence that was put it through the coding method (via "pencil and paper" technique) in order to obtained the categorized results. Based on the obtained information, the research shows the differences in terms of treatment provided in hospitals for long-term patients (LDN) and in inpatient hospices. Whereas LDN nurses are focused primarily on patients' biological needs, nurses in inpatient hospices, apart from providing the biological needs of patients, focus more on spiritual and psychosocial requirements. Another difference can be seen in the individual approach to patients provided adequately in inpatient hospice. This difference is justified by LDN nurses' saying that they have to look after a large number of patients while facing a lack of medical staff. Despite the difficult conditions, LDN nurses try to ensure that this lack of staff is not reflected in their work. Clearly, many of them take their work as a mission. The bachelor thesis can be a source of information for both nursing students and nurses. A brochure has been created that can help nurses work with patients who are terminally ill.
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Communication with dying patient in the department of internal medicine
KUBĚNOVÁ, Nikola
One of the most important aspects of a nurse's work, which is an integral part of this profession, is communication. It is the basis of health and social care in general. Each of us learns to communicate with our whole lives. More specific to our profession is to be able to communicate with a dying person in the terminal stage and his close family. To look at the patient in this situation as a bio-psycho-socio-spiritual model and respect his needs. Shyness is often an obstacle for nurses, the topic of death is too taboo for them and they are unable to provide support to the client in his mental, physical and social condition. . Find out whether the nurses in the Internal Medicine approach patients in the terminal stage individually.
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Hospice care through the eyes of the general public and health care professionals
Světová, Jana ; Víchová, Jana (advisor) ; Jirkovský, Daniel (referee)
Bachelor's dissertation "Hospic care from laymen's and nurses' perspective" assesses laymen's and nurses' knowledge of hospic and palliative care. The dissertation is divided into two parts - theoretical and empirical. The theoretical part explains basic terminology, forms of hospic care and goals of this dissertational paper including history of hospic movement. It does not omit the conception of death by Elizabeth Kübler Ross and her contribution to the terminal patient's nurse care. This dissertation focuses on legislation and the knowledge of hospic and palliative care among laymen and nurses and then it compares and contrasts the hospic care between the Czech Republic and the world. The empirical part sets the goals and working hypothesis for a research. Prime analysis is based on real data from questionnaires. Research outcomes help to understand the knowledge rate of hospic and palliative care among laymen and nurses.
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Paliative Nursing Care of the Patient with Creutzfeldt-Jakob disease
Kubíčková, Tereza ; Lukášová Jeřábková, Lenka (advisor) ; Maffei Svobodová, Ludmila (referee)
Creutzfeldt-Jakob disease (CJD) is very rare disease (estimated incidence is one case for one million people per year), which nature is uncontrollable reproduction of infectious prion protein in brain tissue. In some cases, the disease might have long incubation time but then very fast progression and in all cases, it ends with death. Nowadays we do not know curative treatment and the patient depends only on palliative treatment. The main goal of my Thesis is to describe a nursing care of a patient with this disease and to emphasize the importance of the palliative care. Partial goal is to describe disease progression (clinical condition of the patient) from the admission to the hospice until the end of her life (total of 27 days) and to increase knowledge about this disease among the medical staff. I also set a goal to find out specifics of care of patients with this disease. The Thesis is written as case report of a specific patient with Creutzfeldt-Jakob disease. The methodology for case report is detailed study of patient's medical documentation in the hospice and cooperation with nursing staff and doctors. Based on the case report I can state that palliative care does not differ a lot for varied diseases of patients, however for patients with CJD the specific is the preventive use of...
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Home Palliative Care as Sensitive Way to a Dignified End of Life - Possibilities of Social Work
Adamčíková, Pavlína ; Cimrmannová, Tereza (advisor) ; Nová, Monika (referee)
The aim of thesis is to create an overview of the holistic concept of domestic palliative care in the context of social work. This overview includes identification of the needs of people in the terminal stage of life and the dilemmas that families face in the final stage of the lives of their loved ones. The individual chapters of this thesis describe the needs of the dying and informal caregivers, and they point out the importance of the family environment for coping with death-related concerns. The qualitative survey carried out via semi-structured interviews includes identification of the needs of the dying and caregivers, the dilemmas of caregivers in making decisions about choosing the form of care for their loved ones, and mapping the awareness of caregivers about the possibilities of social work support.
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The Hospice Care Regulation in the Czech Republic
Chmelíková, Nikola ; Angelovská, Olga (advisor) ; Kotrusová, Miriam (referee)
CHMELÍKOVÁ, Nikola. The Hospice Care Regulation in the Czech Republic: Charles University in Prague, Faculty of Social Sciences, Institute of Sociological Studies, Department of Public and Social Policy, 2014. Thesis Supervisor Mgr. Ing. Olga Angelovská The thesis titled "The Hospice Care Regulation in the Czech Republic" is about hospice care in the Czech Republic of its development due to the following important foreign and Czech documents in health and social care. The main reason that leads me to the elaboration of this work is particularly ambiguous and rather one-sided definition of hospice palliative care in the Czech Republic in terms of health care. In the analysis and evaluation, which is the main part of the paper I will draw on already existing documents and data that relate to the topic immediately. Another integral part of the consultation and discussion with experts from the ranks of both health and social services in providing care face barriers that currently has inadequate definition of the operation itself. The aim of the thesis is the analysis of documents and data relating to the regulation of hospice care in the Czech Republic, and their subsequent reflection of professionals who care about the issue of dying deal in their working lives. Keywords hospice care, legislation,...
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