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Connections of Posttraumatic Stress and Growth in Childhood Cancer Survivors and Their Parents
Koutná, Veronika ; Blatný, Marek ; Jelínek, Martin ; Vobořil, Dalibor
Posttraumatic stress (PTS) and growth (PTG) have been described in both childhood cancer survivors and their parents. This study aims to analyse the parent-child connections in self- reported PTS and PTG as well as the concordance of child self-reported and parent proxy- reported PTG. The sample included 142 parent-child dyads. Both survivors and parents self- reported PTS and PTG. Parents also proxy-reported PTG in their child. Correlations were performed between self-reported measures of PTS and PTG as well as parent proxy-report of PTG in the child. Parent proxy-reports of PTG in their child are more strongly related to parental own PTG than to PTG self-reported by the child. Parental PTS and PTG are correlated, but in survivors, PTS and PTG are not related. Parent proxy-reports of PTG in their child may reflect their own PTG rather than PTG of their child. The relationship between PTG and PTS in the context of childhood cancer differs depending on the reporter (parent/child).
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Relationship of Posttraumatic Stress and Growth with Quality of Life in Childhood Cancer Survivors
Koutná, Veronika ; Blatný, Marek ; Jelínek, Martin ; Vobořil, Dalibor
Childhood cancer is an event with the potential for both posttraumatic stress disorder (PTSD) and posttraumatic growth (PTG). While full PTSD is rare in childhood cancer survivors, PTG is common in this population. The relationship between posttraumatic stress (PTS) and PTG has not yet been clearly established, and the relationship between PTG and quality of life (QOL) is unclear. In a group of 188 childhood cancer survivors, we used correlation analysis to determine the relationship of PTS/PTG with specific dimensions of QOL. In the younger group (up to 12 years), the QOL correlated only with PTS, the connection with PTG was not proven. In the older group (from 13 years), QOL correlated with PTS and PTG, but correlations were stronger for PTS. The relationship between PTS and QOL was negative in both groups, the relationships between PTG and QOL in the older group was weakly positive. The relationship of PTG and successful adaptation and good QOL remains questionable.
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Assessment tools and physical therapy intervention for chemotherapy induced peripheral neuropathy in pediatric cancer patients
Votrubová, Barbora ; Jevič, Filip (advisor) ; Medunová, Kateřina (referee)
This bachelor thesis aims to provide a general overview of chemotherapy induced peripheral neuropathy (CIPN) in pediatric cancer patients. The first part describes common characteristics of polyneuropathy and specific attributes of CIPN, its incidence, clinical manifestation, risk factors and summary of most frequently used chemotherapy agents causing peripheral neuropathy. The second part reports current assessment strategies for CIPN based on clinical grading scales and then it reports present knowledge of rehabilitation interventions for patients with CIPN. The thesis also includes description and translation of "pediatric-modified Total Neuropathy Score" (ped-mTNS) and "Total Neuropathy Scale-Pediatric Vincristine" (TNS- PV). In discussion part, there are summarized both advantages and disadvantages of CIPN testing systems. The TNS-PV was concluded as the most feasible scale for use in rehabilitation or oncology clinic settings.
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Nutrition of children and adolescents with cancer
VLKOVÁ, Lucie
Diagnosis and treatment of these diseases are still significantly improving and it turns out that nutrition is a significant part of the outcome. But it can be sometimes difficult or even impossible for the patient to follow dietary guidelines. It's possible that patients can have problems with food intake, their taste can alter altogether, or some food can even raise the need to vomit. Furthermore, food doesn't fulfill just biological needs, but it's a significant for psychological needs, too. It's therefore necessary to look at this issue from broader point of view.The aim of this thesis was to describe the composition and serving methods of nutritious meals in various stages of treatment of children and adolescents with cancer, and to map the experiences as well as view of young patients, their families and their nursing staff on whether and how it is possible to meet the nutritional recommendations while satisfying taste preferences of children. I was looking for answers to two research questions: 1. How has the method of service and the composition of diet been changing throughout the treatment in order to maintain sufficient nutrition? 2. What are the views of young patients, their parents and their attending physicians on the possibilities of maintaining nutritional recommendations? The text is divided into two parts: theory and research. The theoretical part describes the Pediatric Oncology issues and the most common types of cancer in young patients, it also mentions the possibilities of prevention. Then this part deals with side effects of cancer therapy, changes in metabolism, malnutrition, cancer cachexia and anorexia. The biggest part is devoted to nutrition nutritional status assessment, nutritional needs and forms of nutritional support. The last section contains recommendations for situations with food intake complications and the ways of increasing the nutritional contents of diet. Due to complexity of the topic I chose a mixed research strategy, several different methods of collecting and processing of data as well as questioning of various groups of respondents. I was observing 45 oncology patients children and adolescents aged 4 to 18, who are undergoing treatment at the Clinic of Pediatric Oncology in Brno, their parents (7) and their nursing staff (2). The data processing method was qualitative and quantitative analysis of questionnaire responses, interviews content analysis, observation, creation of case study, calculations of menus from the program "Nutriservis Profesional". Results are presented in graphs, tables and plain text. It's divided into three subsections. The composition and method of serving the nutritional meals depends on the needs of patients, their age, diagnosis, treatment and complications, which occur in the course of treatment. It also depends on the cooperation of patients themselves and their families. Different approach is with adolescent patients and with children as well as when they're treated at home or in the hospital. At some stages it is necessary to adjust the nutritional diet to have an adequate nutrition, at other stages the nutritional support is in sipping and when there are complications, which accompany the treatment, the method of service is changed into oral, by probe, or parenterally. Keeping of dietary recommendations represent a significant problem for these patients, which are troubles with food intake during the treatment (95% of patients). Due to children's taste preferences are some forms of nutritional support rejected, even though they are able to maintain the nutritional recommendations. Both young patients as well as their parents have preference for children's taste rather than nutrition. There were some exceptions, however. Opinions of the nursing staff are the same it all depends on the attitude of patients themselves and their families.
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