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Communication in girls with Rett Syndrome
Sobotová, Zdeňka ; Klenková, Jiřina (advisor) ; Durdilová, Lucie (referee)
TITLE: Communication in Girls with Rett Syndrome AUTHOR: Zdeňka Sobotová DEPARTMENT: Department of Special Education SUPERVISOR: doc. PaedDr. Jiřina Klenková, Ph.D. ABSTRACT: This thesis investigates the communication in girls with Rett syndrome. Rett syndrome is a severe neurological disorder leading to multiple disabilities and severely impaired communication skills. The aim of the thesis is to describe the communication skills of girls with Rett Syndrome, the role of parents in the development of communication and the possibilities for communication intervention. This issue is presented on case histories of three girls with Rett Syndrome of various ages, acquired from semi-structured interviews with parents or caregivers of girls and participative observation of girls' behaviors and their interaction with the environment. The research results in the description of motor and communication skills and methods used to develop communication with the three girls with Rett Syndrome. Research shows that even though the communication capabilities of girls with Rett Syndrome are very individual, parents are looking for ways to develop the communication skills of their daughters and they expect the professional advice from special educators, which they, in their opinion gets poorly. KEYWORDS: Rett Syndrome,...
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Volunteer Management in Hospices
Sobotová, Zdeňka ; Tollarová, Blanka (advisor) ; Marková, Monika (referee)
TITLE: Volunteer Management in Hospices AUTHOR: Bc. Zdeňka Sobotová KEY WORDS: hospice, palliative care, volunteering, volunteer management, Volunteer Service Manager This thesis deals with the management of the volunteer program in hospice, mainly from the perspective of the Volunteer Service Managers (VSMs). In the empirical part it brings description of the problems and issues VSMs are facing in eight Czech hospices. Among the main findings of the author are that volunteering in hospices deals with little support from management, lack of finance and difficult acceptance by the staff. The time VSMs can devote to volunteers is too little or too vaguely defined, which does not allow them to really develop the volunteer program. In none of the hospices visited volunteer program evaluation does not take place. Mobile hospices are facing concerns about the responsibilities of volunteers and difficulties in communication with families, which in some hospices lead to the fact that the volunteers in direct care are not involved. In the theoretical part of this work the author offers answers that bring literature to the problems described by her research. Together with the best advice received from respondents of her research are then summarized in the form of a practical handbook for VSMs, which can be...
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Communication in girls with Rett Syndrome
Sobotová, Zdeňka ; Klenková, Jiřina (advisor) ; Durdilová, Lucie (referee)
TITLE: Communication in Girls with Rett Syndrome AUTHOR: Zdeňka Sobotová DEPARTMENT: Department of Special Education SUPERVISOR: doc. PaedDr. Jiřina Klenková, Ph.D. ABSTRACT: This thesis investigates the communication in girls with Rett syndrome. Rett syndrome is a severe neurological disorder leading to multiple disabilities and severely impaired communication skills. The aim of the thesis is to describe the communication skills of girls with Rett Syndrome, the role of parents in the development of communication and the possibilities for communication intervention. This issue is presented on case histories of three girls with Rett Syndrome of various ages, acquired from semi-structured interviews with parents or caregivers of girls and participative observation of girls' behaviors and their interaction with the environment. The research results in the description of motor and communication skills and methods used to develop communication with the three girls with Rett Syndrome. Research shows that even though the communication capabilities of girls with Rett Syndrome are very individual, parents are looking for ways to develop the communication skills of their daughters and they expect the professional advice from special educators, which they, in their opinion gets poorly. KEYWORDS: Rett Syndrome,...
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