|
|
Problems of nursing care for a child with spinal muscular atrophy
BUBALOVÁ, Petra
Spinal muscular atrophy (SMA) is a hereditary disease characterized by progressive loss of -motoneurons of the spinal front corners, the consequence of which atrofizaci of muscles occurs. As a result, children become disabled and infirm dependent on the help and care of others at an early age. This is a relatively rare disease, the prevalence is about 1: 6,000 children. Spinal muscular atrophy is divided into 4 types according to its severity and time of onset of symptoms. Despite significant longtime research, it has failed to find a drug that could cure this disease so far. To the present date, there are only methods that slow the progression. The survey also contained 4 research questions, namely: What are the principles of treating a child with spinal muscular atrophy ? What are the most common problems in the care of a child with spinal muscular atrophy ? Are parents adequately educated on the issue of child with spinal muscular atrophy ? What impact has the presence of a child with spinal muscular atrophy in his family? Qualitative research was used in the implementation of the empirical part . Two qualitative methods were used to collect the data, a semi-structured interview and a hidden observation of the participant . Interviews were conducted with 3 research files, with 11 general nurses from the České Budejovice Hospital and University Hospital Motol, 7 mothers of children with I and II. type SMA of a summer camp for children with SMA and with 5 personal assistants. This thesis should help nurses and the public to gain awareness of the disease of Spinal Muscular Atrophy. It refers to all aspects of care of such a sick child, with which their parents daily struggle. Caring for a child with SMA is very difficult for their caregivers and requires considerable restrictions for the whole family. Information observed during the research were presented at a seminar for nurses in the České Budejovice Hospital in January 2015.
|
|
|
The influence of environment on leisure activities for people with disability movement.
BARTOŇOVÁ, Květoslava
This thesis addresses the influence of the environment on the passing of free time for physically disabled. The theoretical part concentrates on information about a physical disability, analyses and explains the terminology. Further, it focuses on the features, individual functions and factors of free time. In the practical part, I pay attention to qualitative study, mainly interviews regarding the origin of physical disability, its compensation, self-sufficiency, obstacles, which individuals have to overcome, social system and passing of free time. The findings were analysed and organised in tables. The main aim of the thesis was to ascertain the barriers that occur, point out the ones that aggravate and reduce the quality of life of individuals with physical disability in České Budějovice. In the practical part, I established these assumptions: 1. I have assumed that individuals with physical disability very intensively perceive the financial barrier in the framework of spending free time. 2. I have assumed that individuals with gained physical disability who were actively spending their free time, wish to continue. Both of the set assumptions, after detailed research and summarization of the available data were confirmed.
|
|
|
Successfulness of integrated pupils involved in inclusion education at schools related to Arpida centre,in mainstreem education
HONNEROVÁ, Anežka
Educational integrity is a term used quite often at present. It means the involvement of pupils with special needs in the main educational process. The expression integration also means complete involvement of the person among intact part of population. School/ educational integration is a very demanding process. Its success depends on many factors and it is not always easy to achieve it. Obviously, integration has its limits, which relate to the degree and type of the handicap. There appears incomprehension of both teachers and classmates many times. I have chosen the topic dealing with the success rate of integrity of the children from the rehabilitation centre for disabled people ARPIDA in České Budějovice (later only ARPIDA) as I had experienced the process of integrity on my own. I had begun attending the centre in the second year of the primary school and I finished the first stage of the obligatory school attendance there. Then I returned to the primary school in Dubné, where I accomplished basic education. I started studies at Bishop Grammar School of J. N. Neumann in České Budějovice the same year, where I graduated successfully four years later. After that I enrolled the Faculty of Health and Social Studies at the University of South Bohemia., where I have been studying the branch of Special Pedagogy. As for the theoretical part of my thesis I define not only basic terms such as integration, inclusive education, individual curriculum, a teacher´s assistant, a disabled pupil, the characteristics of disability, a pupil with a physical disability, cerebral palsy, spastic triparesis, congenital spina bifida, a pupil with a physical disability and his self-esteem among intact classmates, the family and its influence on the inclusive process of a pupil, but also, last but not least, the centre ARPIDA. I have analyzed factors influencing integration as well. I have tried to find out how disabled pupils are integrated among their peers. The aim of the thesis is to monitor and find out the success rate of inclusive education of former child clients of the centre ARPIDA, who were later involved in the main educational process and they study at college or university now. In the research part of the thesis I have attempted to find out whether the children from the district of České Budějovice who had attended the centre ARPIDA integrated in the main educational process successfully. I have included four respondents who used to be clients of the ARPIDA centre in my research. All of them were integrated together in the basic educational process at primary school in 2003. Three of them attended the same classes as I did in the centre. The main aim is to monitor and determine the success rate of inclusive education. Casuistries describe the course and the results of the integration. I used different research methods: anamnesis, observation, secondary analysis of data and an interview belong to them. I had asked two questions in the research part, to which I searched for answers after that. At first I assessed each of the respondents individually and then all of them together. In conclusion, I consider it necessary to mention that the respondents agreed their families, classmates and teachers´ friendly attitude helped them a lot while being integrated. Mostly they found the transfer from the ARPIDA centre to primary school the most difficult while one of them had difficulties when finishing primary school and beginning studies at grammar school. I have found out, as the result of my research, the integration of the monitored respondents was successful.
|
|
|
The development of sibling relationship influenced by physical disability
FLAŠKOVÁ, Petra
A family is the basic unit for growing up of children in any way. One of the major prerequisites for child´s development is sense of security, love and the permanence of home environment. Children form a close attachment not only to their parents but to their siblings as well. The sibling can offer emotional support, sharing of both the happiness and the disappointment, the sibling can also keep some secret from parents or become a source of teaching new social roles. On the other hand, there can be a lot of conflicts and misunderstandings. Jealousy and rivalry can occur between the siblings as well. Every sibling relationship is specific in a sort of way. Even if one of the siblings is physically disabled, there can still be a very close attachment between them. The first chapter of the theoretical part deals with the sibling situation and its individual attributes of the order of their birthdates. The second chapter describes the factors that can influence the sibling situation. In the third chapter, I try to deal with the relationship between the siblings who create the own subsystem of family. They have to share the parent´s attention. Health disability is defined in the fourth chapter of this thesis and the topic continues up to physical disability. A specific attention is paid to the issue of children cerebral palsy and disabilities affiliated.In the practical part of the thesis was try to find out how the relationship developer between a healthy sibling and the other sibling with physical disability. Among the partial targets of my thesis is to find out whether the sibling situation has any role in the relationship and what demands from parents are placed on the healthy sibling. I chose qualitative research for my practical part and the collection of information was made by the method of interviewing. Then I have chosen semi-structured interview. The research was held from April to July 2013. The representative sample which I have chosen was formed from three groups of respondents. The first group contains intact siblings, the second group is formed by siblings with physical disability who are in a sibling relationship with the first group and the third group includes parents of these siblings. The interview with the second group was not always possible due to the degree of mental disability. The research indicated that informing about the disability of the sibling is one of the most important factors for the development of the relationship. Their future relationship is based on the healthy sibling´s reaction about the information of the disability of his sibling. The high-risk period of time of development of the relationship is the time of growing up. The relationship was stabilised in the time of maturity. The precondition for a good development of the relationship influenced with physical disability was spending the spare time together and there is usually more free time in childhood than in adulthood. The research proved the influence of sibling situation. This means, that the younger healthy sibling takes the role of the first-born instead of his or her older sibling with disability. The former expectations and vision of the parents could not been fullfilled with the disabled child. Therefore the parents place increased demands about the school success and the whole life of the healthy child. Healthy siblings accepted the increased attention which their parents paid to the sibling with physical disability. Anyway, there were several examples when the healthy child was jealous about his disabled sibling. This bachelor thesis could be helpful information source for the families who have children with physical disability. Further it could be also useful for the workers on helping professions.
|
|
|
Therapeutic techniques and their use for children with disabilities at school age
KOLÁŘOVÁ, Marie
The topic of this bachelor thesis are therapheutical techniques and the way they are used in helping school-age children with disabilities. The theoretical part of this thesis defines the terms "therapy", "therapist" and ?comprehensive rehabilitation system?. Comprehensive rehabilitation system comprises not only occupational, social and pedagogical resources, but primarily also therapeutic resources that include (but are not limited to) therapies (e.g. ergotherapy, animal-assisted therapy, music therapy or drama therapy). Therapies are the prevailing topic of the major part of this thesis, which mainly deals with features of individual therapeutic techniques used in specific therapies. My thesis also describes development stages of school-age children, which are divided into "lower" and "higher" school age. In final conclusion of the theoretical part, I also briefly refer to physical disabilities (etiology, types of disabilities and associated illnesses). The goal of the practical part of my bachelor thesis is to research the type of therapeutic techniques that are currently being used for specific therapies in Arpida therapeutic centre in the town of České Budějovice. To achieve this goal I have set one primary research question: to reseach the types of therapeutic techniques used by therapists for treating children with physical disabilities. My research have demonstrated that in the field of ergotherapy the therapists from Arpida centre primarily practise three basic techniques: activities of daily living ? ADL, hand ergotherapy, that is focusing mainly on developing fine and gross motor skills of children with physical disabilities, and (last but not least) therapeutic games. There are several of them being used and their aim is to develop cognitive skills of the child, his or her imagination and creativity and also to develop the above-mentioned fine and gross motor skills. Another from analysed therapies was animal-assisted therapy. In this centre, it was practised only in the form of canistherapy (therapy aided by dogs) and hippotherapy, in which the main therapeutic resource is a horse. My research has demonstrated that, in the field of canistherapy, therapists mainly practice Animal Assisted Activites, Animal Assisted Therapies and Animal Assisted Education. In the field of hippotherapy, my research showed that the most frequently used techniques are horse-riding for pedagogical-psychological purposes and hippotherapy, during which the most frequently used client positioning is lying on back, leaning on forearms, leaning on palms and sitting position. The third analysed therapy was art therapy. The most frequently used techniques were drawing, painting, mixed-media techniques as well as other graphics techniques or ceramics work. Was focused on another area - music therapy. For school-age kids with physical disabilities, my research showed that therapists practice techniques such as rhythm games, games with objects and tools, music and artistic techniques, music theatre games, improvisation and games with singing. The aim of these techniques is to target kids awareness, memory and thinking training as well as help them to express their then current emotions. Last but not least, it also helps them develop their motor skills. The next analysed therapy (and a last one) is drama therapy. In this area my research demonstrated that it is not all about drama therapy itself.
|
|
|
Specific elemets of civil defence of the population regarding physically disabled people of the Slovak Republic.
HARMANOVÁ, Veronika
In Slovak Republic, fundamentals of protection of people, property and environment are established by the Constitution of Slovak Republic, the Security Strategy of Slovak Republic and by numerous Acts, Declarations or Regulations of Government which refer to Civilian Protection and Integrated Rescue System. Legislative standards with regards to protection of health or property does not take into account people with health disabilities despite the fact that the right for safety and timely warning of imminent danger is granted for every citizen on the territory of Slovak Republic. Objective of my diploma work is to investigate readiness of institutions participating on solutions of extraordinary events which struck people with health disabilities. Based on results of quantitative survey we would like to point out on deficiencies of the system and to propose a solution to improve procedures of the Integrated Rescue System and Civil Protection with regards to people with health disabilities. Further objective is to process a proposal of methodical tutorial which would contain basis gesticulation important for communication with the hearing impaired. Theoretical part of the diploma work consists of several chapters. The first part discusses basic families, classes and types of health impairment. Further on system of Civil Protection and its mission was processed. Last part is dedicated to the Integrated Rescue System. In that chapter we described fundamental and other rescue branches which by large participated on solutions of extraordinary events. The theory was processed by means of law legislation, sources of literature and internet websites. The empirical (practical) part of the thesis has been used qualitative research method. Because it is extremely difficult to collect such data were made through guided interview with experts of Civil Protection and managers of particular rescue branches (Fire fighting and Rescue Force, Rescue Health Service, Police Force) only in three selected counties of Presov region (Poprad, Stará Ľubovňa, Prešov). Results of the managed interview were evaluated by SWOT analysis which compares the internal and external environment. On the basis of empirical phenomenon a searching strategy (WO) was chosen whereby the focus was laid on utilizing opportunities and eliminating weaknesses. Based on results we concluded that issue of health disability isn?t incorporated into law legislation and plans to solve extraordinary events. There is no common education of managerial and executive rescue branches which would enable them to gather fundamental knowledge of classes and specifications of health disability, possibilities of communication and means of first-aid provision. For further qualitative and quantitative development of education there is a deficiency of material-didactic instruments which serve to accomplish the objective. We also concluded that when rescuing health-impaired people there are no special procedures and methods taken into account. At the same time for the hearing-impaired there is no system of timely warning and information of imminent danger and possibility to call rescue branches through the emergency phone line. With regards to existing deficiencies we proposed practical recommendations. To improve communication with hearing impaired people we created a proposal of a methodical instrument for rescue branches which contains basic signs. As a part of it there is also a one-hand and two-hand finger alphabet for refinement and visualisation of words.
|
|
| |
|
|
Society´s perception of disabled people from a social worker´s point of view.
ANTLOVÁ, Jolana
This thesis looks into a social worker?s perspective of society?s perception of disabled people. It points to different kinds of attitude towards various disabilities distinguished by the cultural backgrounds and various types of physical disabilities. The thesis also deals with prejudices, social stigmas and social norms. The research part presents experiences and opinions of social workers who are in direct contact with disabled people and the public.
|
|
|
Ethical Principles of Helpers´Professional Approach to Disabled People in Wheelchairs
HANTOVÁ, Jitka
The thesis aims to identify the most important ethical principles that should be part of the professional approach of helping professionals towards disabled people in wheelchairs, however, their application involves members of the majority society, too. The thesis then refers to the conditions that support application of these principles in helping professionals and the historical development of the care of disabled people in wheelchairs. The thesis includes an important part that presents a conducted research dealing with these principles from the view of disabled people in wheelchairs and helping professionals themselves. Thus the main aim of the research is to compare the two perspectives.
|
|
|
Social and economic aspects of integrating disabled children into mainstream schools
Toboláková, Pavla ; Hadj Moussová, Zuzana (advisor) ; Rotport, Miloslav (referee)
This thesis is devoted to integrating disabled children into mainstream schools. The paper focuses on the integration in secondary education. The first part deals with the theoretical knowledge of issues relating to disability, integration, ensuring the integration of the legislative and not a social and financial demands the integration of those affected physically-tion of pupils in mainstream schools. The practical part is devoted to statistical monitoring of individuals with disabilities with a focus on disability. Closer stripped statistics give high school students with physical disabilities. Following are the results of the research in the field of integration in secondary education with a focus on a brief characterization of the integration of pupils in selected schools.
|
guest ::
