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Diagnostic experience of patients with fibromyalgia-
Králová, Josefína ; Hasmanová Marhánková, Jaroslava (advisor) ; Vokřálová, Eliška (referee)
This paper focuses on the process of establishing a diagnosis for patients suffering from fibromyalgia. First, in the theoretical part, the issue is anchored in the fundamental concepts of the sociology of medicine. The social construction of medical knowledge, of the patient's role, medicalization, and the labelling theory is introduced, followed by a discussion on the contested diseases with a special focus on the diagnosis of fibromyalgia. Moreover, the dimension of gender with particular attention to medicalization and the establishment of diagnosis is described. In the analytical part, there are presented data obtained from ten semi-structured interviews conducted with fibromyalgia patients. Divided into three sections, the analysis focuses on the process of seeking a diagnosis, the consequences of establishing a diagnosis, and the impact of a fibromyalgia diagnosis on a patient's life. In the analytical part, it is also discussed how the diagnostic progress is affected by gender. The thesis' objective is to identify how the diagnostic process in the case of fibromyalgia is developed, in order to describe, among other things, how the diagnosis is socially constructed and what impact it has on the patients, whether in relation to medical professionals, state programmes of social assistance, the...
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How hospice workers perceive death and dying
Voldřichová, Johana ; Remr, Jiří (advisor) ; Vokřálová, Eliška (referee)
The bachelor thesis deals with the topic of how hospice care workers perceive and talk about death and dying. Much of the work that discusses this topic views it from the perspective of patients or relatives or loved ones. This paper aims to describe how hospice care workers work with the everyday presence of death. In the first part, the thesis discusses theoretical concepts that are applicable to hospice care and hospice work. Primarily, the thesis focuses on the topics of coping with death, tabooing death, and working with the body. It is qualitative research based on key informant techniques. Purposeful sampling was used to obtain informants. Ten semi- structured in-depth interviews were conducted with hospice and palliative care workers. In the practical part, the findings from the interviews obtained in a hospice in the Central Bohemia region are elaborated. Thematic analysis helped me to identify three main themes, which are, coping, working with the body and the forms and concepts of death. The thesis attempts to develop the existing research existing on this topic. It is important to understand how workers work with death and how they perceive it due to how stressful this work is, but also because the current society is aging and there will be a need for more workers and overall hospice care.
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Evaluation and quality of provided palliative care counseling from the perspective of care users and their loved ones
Vokřálová, Eliška ; Vrzáček, Petr (advisor) ; Krejčí, Jiří (referee)
The diploma thesis deals with the provision of conciliatory palliative care at the General University Hospital in Prague. The main aim of the work is to answer three research questions, formulated in connection with the aim of the work, which is: "To identify important aspects of the quality of care and to find out how patients and relatives evaluate the specialized palliative care provided in a hospital environment." The work is divided into two parts: theoretical and empirical. The theoretical part of the thesis defines key concepts and describes the theoretical knowledge that relates to the topic of the thesis. The empirical part of the thesis describes the methodology of the research survey and the analysis of the obtained data, connected with the theoretical framework of the thesis topic. This work contains two main findings, namely satisfaction and identification of important aspects of the quality of specialized palliative care, provided through the palliative care counseling team at the General University Hospital from the perspective of patients and their loved ones who were in the care of this team. Keywords: Palliative medicine, palliative care, specialized palliative care, palliative care counseling team, multidisciplinary cooperation, quality of care
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Attitudes of the public towards advence directives
Vokřálová, Eliška ; Heřmanová, Jana (advisor) ; Vácha, Marek (referee)
Bachelor thesis deals with the topic of advance directive and the public awareness of this subject. The theoretical chapter is dedicated to the concept of advance directive and its content, legal standard, history, ethical aspect and existing research. The practical part of the thesis focuses on research on knowledge of public at the age of 20 to 30 about the advance directive. At first the basic information about respondents is introduced, subsequently the analysis of research questions is performed and finally there is a discussion about the results of research compared to the results of research carried out by research agency STEM/MARK in 2015 and also with results of research in bachelor thesis by Adéla Kadeřávková in 2018. Keywords: advance directives, paternalism, Nancy Cruzan, Karen Ann Quinlan, human dignity, ethics, morality, autonomy
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