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Needs and Experience of Families with Child Suffering from Spinal Muscular Atrophy - Current Situation and Challenges for Social and Health Care System in Czech Republic
Schagererová, Iveta ; Štegmannová, Ingrid (advisor) ; Tichá, Růžena (referee)
Situation of families in which a child with spinal muscular atrophy was born, is the topic of this thesis. This rare genetic disease affects neuromuscular system of children and shortens their lives. In most severe cases the failure of respiratory functions comes in the first year of child's life. This thesis is focused on support that Czech system of social and medical services provides to families with this disease. Next, it looks into needs of these families and examine the extent to which the system is able to saturate them. Very important point in this research is also families' perception of quality of care. The research was implemented with use of qualitative methods, mostly by semi-structured interviews which followed families' journey through the system of social and medical services. Then there is a comparison of experience of families with theories, policy and other normative framework and suggestion of steps that should be taken to improve families' satisfaction with services they receive concerning the child's disease. Key words: spinal muscular atrophy, rare diseases, patient's autonomy, patient- centered care, patient journey, quality of care.
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Evalution of paramedical staff
Kramešová, Lucie ; Havrdová, Zuzana (advisor) ; Tichá, Růžena (referee)
8 Abstract This thesis deal with s periodical evaluation paramedical staff problem s. Find manager and paramedical staff stand and make a suggestion meaningful changes of system evaluation is object of this thesis. Thesis is divided in two sections. Theoretical section devote to problems of human resources in context with management quality and introduction change in organization. Last chapter is concentrate on organizational culture, what has significant influence to implementation changes. In second, practical part, thesis describes research in health organization. Qualitative and quantitative research was preceded. Interview with managers was held in qualitative research. In quantitative research was used questionnaire for paramedical staff, what contained questions about evaluation and questions about organizational culture research from six work life area views (AWLS). Questions regarding confidence were added to questionnaire. Research proceeded in health organization (hospital) from April to August 2012th. It referred to periodical evaluation inconsistency and does not take place trough the organization. This discovery is beneficial for evaluation system implementation. Establishing evaluation form and directive for performing this evaluation is practical output. Keywords: periodical evaluation,...
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Evalution of paramedical staff
Kramešová, Lucie ; Havrdová, Zuzana (advisor) ; Tichá, Růžena (referee)
8 Abstract This thesis deal with s periodical evaluation paramedical staff problem s. Find manager and paramedical staff stand and make a suggestion meaningful changes of system evaluation is object of this thesis. Thesis is divided in two sections. Theoretical section devote to problems of human resources in context with management quality and introduction change in organization. Last chapter is concentrate on organizational culture, what has significant influence to implementation changes. In second, practical part, thesis describes research in health organization. Qualitative and quantitative research was preceded. Interview with managers was held in qualitative research. In quantitative research was used questionnaire for paramedical staff, what contained questions about evaluation and questions about organizational culture research from six work life area views (AWLS). Questions regarding confidence were added to questionnaire. Research proceeded in health organization (hospital) from April to August 2012th. It referred to periodical evaluation inconsistency and does not take place trough the organization. This discovery is beneficial for evaluation system implementation. Establishing evaluation form and directive for performing this evaluation is practical output. Keywords: periodical evaluation,...
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Needs and Experience of Families with Child Suffering from Spinal Muscular Atrophy - Current Situation and Challenges for Social and Health Care System in Czech Republic
Schagererová, Iveta ; Štegmannová, Ingrid (advisor) ; Tichá, Růžena (referee)
Situation of families in which a child with spinal muscular atrophy was born, is the topic of this thesis. This rare genetic disease affects neuromuscular system of children and shortens their lives. In most severe cases the failure of respiratory functions comes in the first year of child's life. This thesis is focused on support that Czech system of social and medical services provides to families with this disease. Next, it looks into needs of these families and examine the extent to which the system is able to saturate them. Very important point in this research is also families' perception of quality of care. The research was implemented with use of qualitative methods, mostly by semi-structured interviews which followed families' journey through the system of social and medical services. Then there is a comparison of experience of families with theories, policy and other normative framework and suggestion of steps that should be taken to improve families' satisfaction with services they receive concerning the child's disease. Key words: spinal muscular atrophy, rare diseases, patient's autonomy, patient- centered care, patient journey, quality of care.
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Work-Life balance among cardiologists and cardiac surgeons
Klimešová, Zuzana ; Šmídová, Olga (advisor) ; Tichá, Růžena (referee)
This thesis deals with the work-life balance issues encountered by cardiologists and cardiac surgeons. The main objective of this study was to find out on how these young doctors in cardiology specialization training combine their work and other areas of their lives that they consider important and draw attention to the problems of being junior doctors with a vision to use the obtained results to improve their conditions both for work and for quality of life. Qualitative research techniques were utilized and data were obtained from semi-structured interviews with our respondents. The theoretical part of this thesis presents the informations and concepts regarding balance between work versus private life concerning their interdependencies. It focuses both on professional and social aspects and their eventual conflict. Partly, it maps motivation: motivators (motives and aspirations), which led these young doctors in their lives and careers, as shared motives characterize the level of content and identification with professional roles and their professional aspirations. Widely, it deals with the working conditions of junior doctors that the de/motivation to contribute. Moreover, part of it was also given to possible future impacts on doctor's health resulting from failure of work-life balance. The...
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Ethical aspects and dilemmas of work of fireman-rescuer
Tichá, Růžena ; Štegmannová, Ingrid (advisor) ; Oplová, Alena (referee)
A fire guard/rescuer vocation means to fight fire and to rescue human lives on daily basis. It is physically and mentally a very demanding job which impose excessive requirements on firemen/rescuers, especially during interventions at tragic events. In my thesis, I tried to realize fire guards'/rescuers' attitude to their job from the ethic side, especially how they perceive following ethic standards during their interventions. I am describing ethic dilemma in this occupation, firemen's attitude to this issue and their experience as well. In the theoretical part of my thesis I am introducing a summary of expert opinions on general apprehension of ethic and moral requirements, on the value system, on the stress incidence in a human life and on the need of psychological support. These all things compared to the professional fire guards'/rescuers' activities. The practical part is presented by the qualitative research where interviews with fire guards/rescuers and their commanders represent experiences and opinions of both groups on this issue. Key words: ethics, dilemma, fire guard/rescuer, values, psychological support, stress.
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