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The process of parents coping with birth of a child with severe disability
KORNFELDOVÁ, Vendula
A child begins to create first relationships within its family, especially if it is a nuclear family. These relationships tend to deepen over time. The child forms relationships towards its parents or siblings. Even sibling relationships are extremely important in shaping the child's personality and its further development. If the child is born with a severe disability, it poses a great burden and responsibility to the parents. It causes a lot of worries because the family needs to deal with the birth of such a severely disabled child and try to accept it in the family. This thesis is divided into two parts theoretical and practical. The first chapter of the theoretical part focuses on a family, functions of a family and on families that take care of disabled children. The second chapter describes individual types of severe disabilities. The third chapter deals with the ways a family reacts when a severely disabled child is born. This chapter therefore discusses individual stages of coping. The practical part was carried out using a qualitative research method. The research took place in the Příbram District. Information and data was obtained by a semi-structured interview with the children's parents. Since it is not necessary to have a lot of respondents when conducting a qualitative research, I believe that even a small number of respondents I worked with during my research is sufficient and appropriately complements my thesis. The main aim of the thesis was to determine in what way the parents coped when a severely disabled child was born. For the purposes of the interview, I formulated individual questions that were vital for the main research question and objective of the thesis. The research results confirm that not every parent can entirely cope with the fact that he or she has a severely disabled child. This is shown by the results of the individual interviews and also by the conducted research. Among other things, the research also proved that most parents have not been or still are not sufficiently informed about the reason why their child was born disabled. This thesis could be beneficial for parents whose child was born severely disabled. Such parents would be able to learn about families that suffer the same (or even worse) fate. The thesis could help them to share their feelings and find strength as well as hope for the future.
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The attitude and the role of siblings of children with strong mental handicaps in a family.
TŮMOVÁ, Gabriela
This dissertation is focused onthe role of siblings of children with severe health disability and the position they take within a family. The main objective was to find out what role and position healthy children and their siblings with disability take with each other. I decided to focus my main research questionon "If & howthe role and position of a healthy sibling towards a sibling with a severe health disabilitytransformed during adolescence". The theoretical part of the dissertation focuses on the family, its function, upbringing styles and types of contemporary families. Furthermore I also focused on health disability. I defined a physical and mental disability, identified the difference between congenital disability and disability gained during life. I also looked in depth into cerebral palsy. Apart from this disability I also briefly looked into neuromuscular and other muscular diseases and orthopaedic disability. The next part of my theoretical study concerned a family with a disabled child. Here I focused on the very important process of coming to terms with the birth of a child with disability as described by well-known Swiss- American doctor Elisabeth Kübler-Ross. Last but not least I looked at siblings of a child with a disability, their inter-relationship withthe disabled child and how the child copes with their impairment. Considering the number of respondents and openness of the questions I have opted for qualitative research. This consisted of eight respondents whom I know personally and were willing to participate in my research. Data collection took place by means of prepared questionnaires that I sent by e-mail. All respondents were made aware ofthe topic of my dissertation, its objective, research question and that anonymity would be provided on the information given in questionnaires about which some of them had inquired. I opted for questionnaires because some of the respondents were currently overseasor due to various other reasons were not able to meet in person. I asked open questions hence, without the option of choosing an answer. That way the respondents had completely unrestricted opportunity to express their opinion. This dissertation could be beneficial to the siblings of children with a severe health disability themselves who could see this issue from theperspective of other siblings. It could also help parents of children with a health disability to realise how this issue is perceived by a healthy sibling.
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Options of location children with disability for foster Care
PÍCHOVÁ, Pavla
My bachelor thesis deals with possibilities to place a child with a health handicap from an institutional care to an alternative family care. I have chosen people bringing up a handicapped child in a system of a family care and a social worker from children social-legislative protection department as a goal group. A theoretical part of the thesis is divided into four chapters. The first chapter defines a family being a primary (basic) socializing factor, and then it devotes to a legal view on parentage i.e. parental responsibility. As the thesis concerns a foster care, when parents do not often fulfil or even misuse this parentage responsibility, a subhead deals with a restriction of it. The second chapter examines in details a system of foster caring. In single subheads it specifies forms of a foster care such as a custodial care, adoption, foster care, temporary foster care, guardianship, custodial care, host care and SOS children´s villages. Every information is processed according to the new Civil Code (No 89/2012 Coll), which has been in operation since January 1,2014 and it has replaced the Family Code. I have also taken information from the Act No 359/1999 Coll of children social-legislative protection, which has also been amended. In each subhead it is written what the conditions of a single foster care are and whether the caring person could claim social security benefits or what the amount of them is, as well as rights and duties of a caring person. I must point out that the new Civil Code does not solve or even mention some original information from the Family Code. I devote the third chapter to a dedication of health disabilities, the types and specifics. The last chapter deals with a handicapped child in a foster family. An awareness about handicapped children is highlighted there. A subhead dealing with an arrival of a child to a family shows the importance of readiness of a family and problems which could occur during the first months of a foster care. In a practical part of my thesis I used a method of a qualitative research. This research proceeded in a form of semi-structured interviews, which are led with four foster-parents. Three of them care about handicapped children and one who looks after children without with any disabilities. A social worker dealing with a foster care in an office at municipality with extended powers was also interviewed. Foster parents with handicapped children answered questions from four areas: Motivation to accept a handicapped child, Difficulties and realisation of a foster care with children with specific needs, Information and sources of help, Importance of a care and its chance. Their replies are enriched of opinions of a person, who cares about non-handicapped children. The main goal was to find opportunities of handicapped children to find a foster family for them and that is willingness/motivation of foster family volunteers to accept a child with a handicap. A partial goal was to reveal, which handicapped children have the best chance to find a foster family. Questions about child care, importance and last but not least information where diagnostics is placed, which is often incorrect or incomplete and thanks to that handicapped children are sent to foster families, were discussed as well. This thesis brings an overall view on problems of handicapped children in a system of a foster care, which is not widely mapped in the Czech Republic.
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Expectations of the Parents from the Provided Social Services in the Kaňka o.p.s. Tábor
BERANOVÁ, Diana
On the field of social services devoted to children with health handicaps and their families there have been recently established lots of new organizations. So it has been becoming more and more up to date topic. The aim of this thesis, named Expectations of parents about the social services provided by Kaňka o.p.s. Tábor, is to find out actual information whether the parents´ expectations identify with providing of these services. Within this thesis there has been defined the following research question: Do the parents´ expectations correspond with the social services provided? The thesis has been divided into the theoretical and empirical part. The theoretical part has been devoted to the sphere of family, the family surroundings which has been the foundation stone of the life of the children with health handicaps. It is also devoted to parents of children with health handicaps in context of social services provided, characteristic of these families according to the law No. 108/2006 about the social services. There has been specified the social service of early care, personal assistance and day care centre offered by the Kaňka o.p.s. Tábor institution. There have been also mentioned particular therapies realized for the children with health handicaps. The therapies seem to be meaningful for these children at least because the children calm down, entertain, relax and develop during them. There have also been mentioned variety of special aids often used during the activities with these children, which make the care easier not only to the families but to all persons taking care of these children. You can also find there some non-profit institutions in the southern Bohemia region, which provide similar services as Kaňka o.p.s. Tábor does. And last but not least the theoretical part is devoted to the term Expectation itself - what do parents expect of the social services mingled with individual planning of social services, thanks to which the particular organization can be better joined in the process of expectations of the social services. The empirical part deals with the institution Kaňka o.p.s. Tábor with respect to the social services provided to the families of children with health handicaps, who attend this institution. There have besides other things been engaged the other services provided by the institution Kaňka o.p.s. That means therapeutic activities, free time activities, rehabilitation integration stays, one-time activities etc. This part has been enriched with the basic case history of individual clients whose families were part of the research. According to these case histories it is more obvious which clients with a health handicap really attend the institution Kaňka o.p.s. In view of the determined aim there was chosen the qualitative research strategy, the method of asking questions, and the technique of half-structured dialogue. The research was realized in the Kaňka o.p.s. Tábor institution and there were involved twenty respondents. For this research there was chosen the method of intentional choice, that means ten parents of children who attend the Kaňka o.p.s. institution and use the social services there and ten parents of children who also attend this institution and not only use the social services, but also the compulsory education. In the thesis there were determined the spheres of questions relating to the given issues of expectation of the social services provided by Kaňka o.p.s. Tábor. During the data processing, systematization and interpretation there was used selective coding within the method of the contents analysis. There were created categories which facilitate the organization and classification of the data. The result of the thesis has shown that in the research there were involved predominantly women in the age from 40 to 50 and most of them were mothers of the children.
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Using of the Care benefit by Users of Social services
ŠINÁKLOVÁ, Marie
The bachelor thesis deals with the widespread social benefit, the attendance allowance and problems associated with it, which implies the main objective of this work, to find out how or what for this allowance is used. This thesis consists of a theoretical and a practical part. In the theoretical part I focused mainly on the purpose, the principles and basic functions of the allowance. I have also described who is and who is not entitled to the allowance, and when such entitlement may extinguish. In this part, I also focused on what the allowance is intended for and what it has to be properly utilized for. Furthermore, I mentioned in my thesis the inspection in accordance with the Social Services Act and the means of protection applied by the state in order to prevent the abuse of the allowance. In the theoretical part, I also mentioned the history of this allowance when it still was an allowance for attending a close person. Due to the fact that the attendance allowance is intended for people who are disadvantaged in some way, I also put a chapter on disability into the theoretical part, where I gave a definition of disability, its types and forms or for example specific needs that result from such disability. In the second, practical part, the qualitative research method was applied. Data collection was conducted by questioning using the technique of a semi-controlled interview. Interviews were conducted with six communication partners that I have selected using the "snowball" method, so called accretion. The aim of this thesis was mainly to determine how or what for the attendance allowance is used by ist beneficiaries. Whether the amount of the attendance allowance is sufficient for its users to cover the costs of providing the social service. Whether users because of the low value of the attendance will be required to limit their individual needs and interests in some way. Whether users have identified some changes after the amendment of the Social Services Act. For the above objectives I tried to get the answers needed to solve the respective issue.
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Importance and possibilities of a teacher assistant in school integration of children with disabilities.
ŠVEHLOVÁ, Petra
For my thesis I have chosen the theme of the importance and possibilities of a teacher assistant in school integration of children with disabilities. The research was conducted in the district of Český Krumlov. There are currently 20 basic schools and 26 kindergartens of which eight basic schools and two kindergartens have integrated pupils with disabilities. My two hypotheses are based on the fact that teacher assistants are the ones who, in my opinion, form an indispensable part of a pedagogic team, ensuring successful and beneficial integration of disabled children into the regular type of schools and school facilities and affecting the process of integration (hypothesis 1). Moreover, I believe that the competencies of two different professional groups, being teacher assistants and personal assistants, are often confused and neither professionals nor the lay public are able to clearly distinguish between their functions (hypothesis 2). In order to obtain information in respect of the set out issues, the method of interviews in the form of questionnaires was used. The questionnaire was designed for directors and teachers of basic schools and kindergartens integrating pupils with disabilities and also for parents of disabled children integrated in a regular school. The processed data are displayed in graphs and tables. Both the raised hypotheses have been confirmed. It was revealed that the respondents consider a teacher assistant as an indispensable element without which the school integration would not be successful. Some of them refer to their previous experience when no teacher assistant was available. The hypothesis which assumed confusion of competencies of an assistant teacher and a personal assistant was also clearly confirmed. The research revealed that some respondents suggested an interesting idea to unify these two assistants' functions into one that would fall under one resort. By this diploma thesis I would like to contribute to the explanation of ambiguities in the competences of a teacher assistant and a personal assistant and to promote the importance of a teacher assistant in school integration of children with disabilities.
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Comprehensive rehabilitation of children attending primary school and kindergarten in Motýlek Koprivnice, p.o.
MÜLLEROVÁ, Tereza
The aim of the theoretical part of this thesis is to describe the comprehensive system of rehabilitation for persons with disabilities. Individual sections are devoted to medical, educational, social and professional means of a comprehensive rehabilitation with regard to the importance of their interconnections. I also focus on the issue of families with disabled children and their needs at different life stages. In this context, I give an account of possibilities of the educational process for children with disabilities from early childhood until adulthood. In our region ? in Kopřivnice and surroundings, there is currently no facility providing complex care to children with disabilities in terms of comprehensive rehabilitation. Individual components of a comprehensive rehabilitation system are provided by various subjects - medical facilities, schools and school counseling facilities, social service providers. The aim of my research thesis was to survey the offer of facilities for children with disabilities and their families and to determine whether the offer meets the needs of parents of children with disabilities who attend the primary school or kindergarten Motýlek Kopřivnice, p.o. To meet the goals I chose a qualitative research methodology, using the secondary data analysis technique, and an interview method, when the technique used was a semi-structured interview. The interview was conducted with 8 respondents - parents of children with disabilities who attend the primary school and kindergarten Motýlek Kopřivnice, p.o. The results of the research show that in and around Kopřivnice parents of these children have the possibility to make use of existing facilities for the comprehensive rehabilitation. At present, however, there is a lack of medical rehabilitation, which used to be provided to children directly at school, as well as the possibility of extra-curricular activities for children and personal assistance services. This bachelor thesis may be used in practice as a background material for planning the comprehensive service development for children and adults with disabilities in and around Kopřivnice.
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Support of families with a handicapped child
LUKEŠOVÁ, Miloslava
The family means an environment in which human personality is formed, where human capital is created and where future generations are raised and educated. Its prosperity influences the development of the state as well as the cultural, social and economic development. It is always a stressful situation for the family if the newborn child is handicapped or if the handicap develops in a child so far healthy. There may be inevitable changes in parents´ employment, in the lifestyle of the family, in the way of spending free time and often even in the relationships within the family. One form of possible alleviation in such a situation is the existence of social services. Act no. 108/2006 on Social Services is aimed at specifying particular types of social services and related allowances as a tool for helping. The intended outcome is a healthy, competitive environment in this sphere and subsequent growth of social services network. The submitted bachelor thesis is based on qualitative research focused on the opinions and attitudes of handicapped children´s parents. The parents evaluated the current forms of support provided for their families, the offer of social services in their region and the services utilization. The thesis also surveys how much information is available to the parents as regards the system of social help and social services, what is their first experience regarding family care allowance. This allowance is a new form within the Czech social support system. The sample consisted of thirty parents of handicapped children and the data collection technique was based on semi-standardized interviews and content analysis. The survey results yielded the following hypothesis for prospective quantitative research: The interest of families with a handicapped child in broader offer of social services does not depend on the nominal value of allowances intended for covering the cost of these services.
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New trend´s in children´s organization "Pionýr"
JANEČKOVÁ, Jana
The aim of my bachelor work was to map the integration of disabled children into the Pionyr activities. There were defined two hypotheses. The first one expects, that Pionyr started with integration of disabled not until the year 1989. The second one supposes, that the group guides and leaders are obliging to adapt the activities and work with children in such a way, which can be possible also for disabled children. The first hypothesis has not been confirmed and the second one has. This research has confirmed that it is being co-operated with disabled children in Pionyr organisation. The group guides work with these children and are trying to suit the activities so the disabled and handicapped children can be actively joined to the others. According to statements of almost all respondents it is right to join the disabled children into the children{\crq}s activities. They can see there the enrichment of the work, learning of mutual tolerance and communication. They see Pionyr as an open organisation to all children.
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