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Specifics of nursing care in children with cystic fibrosis
 ADAMČÍKOVÁ, Hana
The topic of the thesis is ?Specifics of nursing care about children with cystic fibrosis?. Cystic fibrosis, in some countries known as mucoviscidosis, occurs as a part of a complex disorder. It is a hereditary, incurable disease, which may occur at any time during the life. Timely diagnostic of this disease is very important for maintenance of good condition of an affected child. As a late diagnosis involves frequent visits to doctors or hospitals, it leads to complicated examinations with anxiety in the family and postponement of efficient therapy. This is why infant screening is performed in all maternity wards nowadays. The research was performed in the University Hospital Praha Motol. Qualitative research in the form of interviews with 4 nurses from the ward for children with cystic fibrosis, with 5 parents of children affected by cystic fibrosis and with 6 children with cystic fibrosis was applied. Nurses from an anthropologic and spirometry departments and from a department for adults suffering from cystic fibrosis were also interviewed. The responses from the interviews were processed in the form of case studies.
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