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Home Hospice Care
KOHOUTOVÁ, Lucie
Dying and death are topics which most people do not wish to talk about. However, at some point they touch every individual and therefore it is necessary, especially in social spheres, to confront these issues. This assignment concentrates on discovering the hurdles which people meet when caring for loved ones who are terminally-ill at home. The goal of this study is not to eliminate all possible hurdles that hamper care of the dying, but rather facilitate knowledge to those who are interested in giving this kind of care. The theoretical part obtains information about hospice care, further detailed characteristics of home hospice care and a focus on the family as the main source of this care. The research part is made up of a qualitative survey and to collect data a partially-prepared interview was used. The people who were interviewed comprised of fifteen relatives of clients from the Tereza Treatment Centre in Prague 10. In view of the goal of this work, as described above, the following research question was used: What hurdles do family members face when offering terminally-ill relatives care during their final stages at home? The answer to this gave the following as hurdles: physically demanding care, disruption of family relationships, inability to ensure continual care for the terminally-ill, financially demanding care, psychological demanding care, inability to give expert health care, limits associated with accommodation and worsening care of hygiene of the terminally-ill. One overall goal of this study was to discover what is actually known about home hospice care. The research showed that it is unsatisfactory. Only three out of fifteen of those questioned were able to characterise this form of care. Home hospice care is a needed part of care for the dying and therefore a bigger emphasis should be made on the spreading and building up of a net of home hospices and also on the removal of hurdles which hamper this care. Either of these cannot be realised without increasing public awareness.
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