National Repository of Grey Literature 3 records found  Search took 0.01 seconds. 
Quality of life of patients using home parenteral nutrition
HOLOUBKOVÁ, Martina
This diploma thesis deals with the issue of life quality of patients taking home parenteral nutrition. Its intention is to present the achieved life quality scores in the individual domains of physical and mental health in comparison with general population and to point out the differences in what dimensions the life quality of these patients is particularly affected. The theoretical section describes the present situation of the issue of home parenteral nutrition in the CR and the system of the care about the patients. The chapter about indications and contraindications to HPN is elaborated in more detail. The possibilities of the long-term vascular accesses, the care about them are also mentioned here, and particularly the role of a nurse in patient education in transferring parenteral nutrition to the domestic environment. The problems with long-term parenteral nutrition resulting from mechanic, metabolic and septic complications are also outlined. Parenteral nutrition failure is the most serious problem, which is why a chapter on small intestine transplantation as the last resort to save a patient with combined failure of intestine and nutrition is included. The second part of the theoretical section describes the life quality. I wanted to define the nature of this unambiguously graspable a term, determinants affecting life quality are also mentioned here. The possibilities of life quality measurement and assessment and particularly the follow-up use of the obtained data are mostly summarized here. Goals and hypotheses: Two goals were set to meet the main purpose of the thesis: Goal 1: To find whether the life quality of patients on HPN differs from that of the general public. Goal 2: To find the spheres in which the life quality of patients on HPN is mostly affected. A zero hypothesis was set to achieve the goals: Life quality of patients on HPN does not differ from that of the general public. There is no statistically significant difference between men and women. Eight alternative hypotheses to each life quality domain followed: H1: Patients on HPN show lower life quality score compared to the general public in the sphere of physical functions. H2: Patients on HPN show lower life quality score compared to the general public in the sphere of physical roles' limitation. H3: Patients on HPN show lower life quality score compared to the general public in the sphere of emotional roles' limitation. H4: Patients on HPN show lower life quality score compared to the general public in the sphere of emotional limitation of social functions. H5: Patients on HPN show lower life quality score compared to the general public in the sphere of pain. H6: Patients on HPN show lower life quality score compared to the general public in the sphere of general mental health. H7: Patients on HPN show lower life quality score compared to the general public in the sphere of vitality. H8: Patients on HPN show lower life quality score compared to the general public in the sphere of general health perception. A quantitative method of collected data analysis was applied to the research implementation. The research was based on the standardized questionnaire SF-36 supplemented with questions dealing with identification of respondents, time consumption of their treatment and their consequent satisfaction at the beginning. The questionnaire was distributed to patients using home parenteral nutrition in specialized nutrition centres of the Thomayer Faculty Hospital in Prague, Faculty hospitals in Brno and Hradec Králové and also by electronic means through the website of the citizen association Life without Intestine. The obtained data were statistically evaluated and processed into illustrative tables and graphs.Detailed mapping of the problems of life quality and highlighting of the neglected spheres of life quality of patients using HPN are the outputs of the thesis. The results will be presented to the members of the workgroup for HPN within their.
The role of the nurse in providing care to patients with short bowel syndrome
BUNDOVÁ, Jana
Short Bowel syndrome characteristically belongs whithin a groop of recognizable symptoms which result from the loss of small intestine or damaged absorption. Because of the advancement of complex medication and intravenous feeding, home patient care is continously increasing. In the year 2008 intravenous feeding was used upon 57 adult patients in 15 health centres. These patients are vulnerable to the full range of complications. Among the most freekvent complications are infections of the location where the needle is injected. The role of the nurse towards the patient is irreplaceable due to the importance of the care resting upon the nurse to ensure no infection can originate. This research deals with the difficulty of the nurse´s role assigned care of the patient with Short Bowel syndrome. The goal of this project is to map out the level of information and experiences which nurses have regarding the care of those patients whit this afliction. A further goal is to discover how careful the patients are regarding the use and care of intravenous catheter to keep infection away. From the analysis obtained, the majority of the nurses have enough informations conserning the care of patients with Short bowel syndrome. These nurses consider the care of these patients to be every bit as demanding as the care required for patients with other condicions. Nurses are now capable of taking control of this care. This viewpoint is supported by even patients who have this condition who have had faverable experiences. Patients are now well enough informed to be able to indepenndently administer intravenuous injections in ther own home envirement, but always in the copany of family members or a home care assistent

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