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National Repository of Grey Literature 1 records found  Search took 0.01 seconds. 
SCLEROSIS MULTIPLEX LIKE AN ENFORCED LIFESTYLE
 JAKEŠOVÁ, Lucie
My thesis deals with the quality of life in patients with multiple sclerosis. Multiple sclerosis affects mainly persons at the productive age, i.e. between 20 and 40 years of age. As a consequence patients become disabled. I my thesis I describe symptoms of this disease, its clinical picture, causes and origin and also consequences. I am concerned with patient´s psycho-social changes as well as changes in patient´s quality of life as a consequence of the disease. For the practical part I used the quantitative research. Respondents were selected at random with regard to stratification. The techniques of a semi-standardized interview and a questionnaire were used to collect data. The research was conducted in the nursing home Domov Svateho Josefa (St Joseph´s Home) in Zirec at Dvur Kralove nad Labem in November 2007 with eight respondents, six women and two men. The objective was to examine the impacts of multiple sclerosis on the quality of patients´ lives. The targets of my research were also to find out if the help granted by state is sufficient, if the disease affects patients´ family and social relations and if the patients themselves are familiar with all the ways how to get the support from government institutions in terms of some subsidy. The results of the research show that the patient´s quality of life has changed as a consequence of the disease both in the economic respect and the respect of social relations. Most patients are not informed enough on all the possibilites how to get financial aid from government organizations and therefore they do not apply for any subsidy. The suprising finding was that most patients are satisfied with the state support and policy. I was reassured in my belief that there are not enough accessible indoor, as well as outdoor service providers. This is the reason why most patients stay away from social life and do not enter into social relations. Therefore my suggestion is to improve the accessibility to public areas. It is also necessary to enhance awareness of the disease not only in the public but also in patients themselves. The patients with multiple sclerosis often do not know all the opportunities how to improve quality of their lives.
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