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Nurse cooperation in care for child with Down syndrome
SOUKUPOVÁ, Jiřina
Abstract We most often see a family as a social group characterised by interaction within itself. A family is linked through numerous relations and it is also affected by a child. This applies to any other family even a family with a disabled child. In the world, there are about five million people who are affected by Down syndrome. It is the most widespread of all forms of mental retardation. In the Czech Republic, approximately seventy children with Down syndrome are born each year. In this paper, I worked on ``Collaboration of nurses caring of children with Down syndrome{\crqq}. The diploma paper was to give comprehensive information on specialized care of children with Down syndrome, including information on diseases and problems that might occur in the phylogenesis and life of such a child. The purpose of the paper is also proper understanding these issues, linkages with nursing care, therapeutic and diagnostic procedures as well as but finding the right approach to a family, education of families, and communication with parents. As a result, the paper should provide information about the collaboration of nurses and parents in influencing health and development of a child with Down syndrome. The objectives of the paper to map the problem of collaboration of nurses and parents raising a child with Down syndrome and to map the impact of nurses{\crq} collaboration with parents on complex care of children with Down syndrome have been met. Quantitative research was conducted using a questionnaire for nurses in surgeries of paediatricians and general practitioners for adolescents in the South Bohemian and Pilsen the Region. The hypothesis that nurses educate the parents of children with Down syndrome in the field of nursing care has been refuted on the basis of evaluated questionnaires. For qualitative research the following question was specified: ``What is the role of nurses in complex nursing care of children of children with Down syndrome.{\crqq} The answer was assessed based on interviews with parents bringing up a child with Down syndrome. The role of a nurse is one of a care provider, educator, adviser and protector. The findings of this diploma paper could serve as feedback for self-reflection of nurses in paediatric surgeries and to improve collaboration between parents and nurses in complex care of children Down syndrome.
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