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Education of parents of a child with epilepsy
MIKEŠOVÁ, Barbora
Epilepsy is a chronic neurological disorder characterised by serious brain illness that causes unprovoked, repeating seizures. The seizure is characterised as excessive and abnormal electric activity in an individual s brain. Epilepsy is caused by various factors, among them for example genetic factors, birth defects, traumatic brain injuries, surgery, undertaken stress, infection or other illnesses and it can appear at any age. Seizures manifestation can vary in type, development, cause and treatment. A suitably indicated treatment and appropriately educated parents about epilepsy issues and lifestyle measures are the basis for an optimal child s participation in a common group without major restrictions. The aim of this thesis was to find out how the medical personnel is devoted to education of parents and a child with epilepsy diagnosis and in the same time to find out the extent of parents knowledge of suitable treatment and lifestyle measures related to this diagnosis. For the research construct, qualitative research was selected, using a half-structured interview, particularly an interviewing method. In the frame of better quality of result processing, the interviews were recorded on a dictaphone and then re-written exactly and analysed. The results were analysed through a pencil and paper method that uses coding. There were 5 fields categorised: Content of education from the side of medical personnel, Implementation of education from the side of medical personnel, Parents knowledge about lifestyle measures, Sources of information concerning lifestyle measures from the side of parents with a child with epilepsy and educational activities from the point of view of children nurses concerning lifestyle measures. The individual categories are formed by further sub-categories, in which the resulting data are represented systematically. The results are provided in a clear way in individual tables and charts of the practical part of this thesis. From the research emerged that the medical personnel is devoted significantly to parents education and their children with epilepsy in the field of diagnosis, treatment, lifestyle and first aid. However, it was interesting to discover that this education is provided mostly by a doctor, lifestyle measures including, while a nurse provides only additional education in this field. From the results also emerged that the medical personnel try to select suitable educational environment and time intervals according to needs of children as patients and their parents. The parents also have general information about the epilepsy issue and lifestyle measures. It turned out that the parents have enough information concerning medicamentous first aid and the way of given medicaments delivery, but we encounter unfamiliarity of a time border of this medicament's delivery. Parent's ignorance was also discovered in general first aid principles. From the research also emerged that the information about common issues in the field of lifestyle measures was looked for by the parents most frequently outside the hospital environment, that is in the surroundings and on the internet. We decided to form an educational plan based on the results, that can be used as a model base for practical usage by nursing personnel. The educational plan concerns the education about lifestyle measures and first aid during a seizure.
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