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Residental care home Maxov - specifics of residential care for clients with Prader-Willy syndrome
Kadečková, Barbora ; Nová, Monika (advisor) ; Ondrušová, Jiřina (referee)
This thesis addresses the issue of clients with Prader-Willi syndrome (PWS), for whom Domov Maxov has established a residential service. It is currently the only such service in the Czech Republic. The primary objective of this thesis was to investigate the methods employed in working with clients with Prader-Willi syndrome at Domov Maxov and to identify its specifics. The thesis is divided into two parts: theoretical and practical. The field of social work with clients with Prader-Willi syndrome is a new topic in the Czech Republic. Therefore, the theoretical part provides general information about Prader-Willi syndrome. It also focuses on the regimen measures necessary for the safety and healthy development of clients with PWS, along with the ways of working with these clients. The practical part consists of qualitative research. The research was conducted in the form of structured interviews with five staff members of Domov Maxov. The results reveal that working with clients with Prader-Willi syndrome is highly complex. It involves six key components. These include adherence to the daily routine, the number of client activities, ensuring food security, addressing problematic client behaviour, and managing client interpersonal problems and client motivation. All these components are closely...

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