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Nursing care of patients with diseases of the Von Hippel-Lindau.
SIGMUNDOVÁ, Ivana
Theoretical bases Nursing care is a comprehensive health care aimed at health maintenance and support, health recovery, development of self-sufficiency, mitigation of suffering of incurably ill patients and providing for their peaceful dying and death. Nursing care as a practical application of nursing findings takes account of fundamental human bio-psycho-social and spiritual needs. Care is provided by a team of registered general nurses certified to perform a medical profession without professional supervision. The most important part of nursing care is the supervision of patients. Supervision means active monitoring of the health condition of a patient endangered or suffering from a disease which does not require immediate health care but in respect of which it may be expected that the disease will result in such change of the health condition that the timely detection of such change may be of great importance for the treatment of the disease. Objective of the thesis The objective of the bachelor thesis on this topic was to map the matter of nursing care provided to von Hippel-Lindau patients. The thesis has a form of a theoretical paper utilising a wide range of both Czech and foreign literary sources. Used methods The thesis is based on an analysis of Czech and foreign data. Analysis of data from solely Czech sources was unsatisfactory in terms of contents. Awareness of VHL is very low in the Czech Republic as compared to foreign countries where information is collected and distributed to other countries. There is a great growth of VHL research abroad, resulting in new findings. The purpose of the detailed studying of all available literary data was to present a summary of the ascertained facts. Von Hippel-Lindau is one of 7000 known hereditary disorders. It is a genetic disease that causes abnormal growth of veins in some body parts. Their uncontrollable growth is caused by a defect of the VHL gen. A ball of vessels creates hemangioblastomas, angiomas, renal cell carcinomas, pheochromocytomas, pancreatic cysts and tumors, endolymphatic tumors and cystadenomas. Tumors are mostly benign but their location may impose a risk. The first part of the bachelor thesis addresses the cause of the disease, symptoms, methods of examination and treatment. The second part of the thesis is focused on the mental aspects of the disease and the likely future scenarios for VHL patients. Conclusion The bachelor thesis will serve to increase the awareness of von Hippel-Lindau disease among healthcare workers. It may also serve as a source of study materials for students of healthcare branches. The thesis includes a brochure containing introductory information about VHL disease.
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