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Ethical aspects of care for a child with autism spectrum disorder (communication with parents, grandparents, etc.)
PLOCKOVÁ, Lenka
The Diploma Thesis addresses Ethical aspects of care of children with autism spectrum disorders (communication with parents, grandparents, etc.). The research results revealed that parents usually noticed their children?s handicap during the first three years of the children?s life, when children started to show various problems associated with the autism spectrum disorders. Parents agreed that, at the time, the most difficult thing was to cope with the handicap of their children and the symptoms of such handicap. Most parents also stated that it was very difficult to cope with the information about the diagnosis; this process took them a long time. According to parents, the following would be most helpful: information from specialists, contact with parents of children with similar handicaps, support, help of others in their environment, hope, contact to an organization that could help them/give them practical advice and instructions with regard to communication with children and their development. Parents of children with the handicap find contact with parents of children with similar handicaps very important. The following problems associated with the autism spectrum disorders are viewed as the most significant by parents: problems with communication, inability of socialization, stereotype behavior, hyperactivity, possible self-harm, mood changes, but also impenetrability of the world of children with autism spectrum disorders. According to some parents, the diagnostics of their children was not in order. Their children?s autism was not recognized by physicians and parents had to arrange a specialized diagnostic examination on their own. In case of some children, autism spectrum disorders were recognized by a general practitioner for children and youth, who recommended a visit to a child psychiatrist, where diagnostics took place. In these cases, parents were not given any opportunity to give questions to physicians and, moreover, they did not receive much information about the handicap of their children. Parents had to look for important information on the internet or in specialized literature. Furthermore, autism spectrum disorders were not sufficiently explained by physicians to some parents. Parents received information about the consequences of this type of handicap from a special pedagogue, psychologist, or worker of an organization that provides social services to children with autism spectrum disorders and their parents. Moreover, some parents were not given any contact to organizations providing care or consulting to children with this type of handicap. Most parents view the approach of physicians to their children as negative. Children with autism spectrum disorders most frequently visit a child psychiatrist; some children also see a child neurologist. According to parents, physicians only communicate with them and do not focus on their children at all. However, only one half of parents informed their physicians about the way they can communicate with their children. Parents usually prepare for the doctor?s appointment using photographs and pictures that illustrate the visit or its individual steps. A hospitalization of children with the autism spectrum disorder usually took place with their mothers, who rate it as standard, with no problems to address during such hospitalization. Health professionals mostly communicated with mothers and tried to respect the child?s habits.
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Value orientation of children from children's home
PLOCKOVÁ, Lenka
The topic of this bachelor thesis is value orientation of children from the children´s care home. The theoretical part explain basic concepts, such as value, value orientation, family and its function, behavior disorders, institutional and protective in-patient treatment. The practical part focuses on defining objectives of the thesis, used methodology and characteristics of target data sets. The first objective of the work was to map the value orientation of children from Býchory children´s care home with school. The second objective was to find out opinions of workers of Býchory children´s care home with school on development of life values of children in the home. Data were acquired by means of qualitative research, method of questioning, as well as the technique of data collection through a semi ? structured group interview. Two target data sets were chosen for the research. The first target data set consisted of children from Býchory children´s care home with school, upon whom institutional, or protective youth and young offenders rehabilitation was imposed by the court due to grave behavior disorders, which could not be resolved by normal pedagogical procedures within the family environment of these children. The research was carried out in the framework of individual family groups of Býchory children´s care home with school in November and December 2010 and 26 children from this facility participated in this research. The second target data set were the workers of Býchory children´s care home with school. 3 schoolmistresses from this facility participated in research. The research results showed that children from Býchory children´s care home with school knew the concept of life value and understood it. Their major life values include family, followed by health, education, freedom and love. According to children, these values were influenced by their parents, but often also by their friends, or schoolmasters and schoolmistresses of Býchory children´s care home with school. This is closely associated with the children ´s assumption that their value orientation changed after their arrival to children´s care home with school. There was only a minimum amount of children, who considered important other life values than their family, health, education, freedom and love. It further followed from the research that children have an idea about values of their parents. They think that the biggest value for the parents are their children. This work can serve as an inspiration for deeper understanding of values of children with disorders from children´s care home with school, as well as problems of their development.
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