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Care for children with autism spectrum disorders in the home environment
FLORIÁNOVÁ, Eliška
The bachelor thesis deals with the care for children with autism spectrum disorders (ASD) in the home environment. The thesis is divided into a theoretical and a practical part. The historical development, classification, characteristics, etiology, clinical picture, diagnosis and therapy of autism spectrum disorders are discussed in the theoretical part. The most important chapter of this theoretical part is family and care in the home environment. It describes a family and a child with ASD, as well as homesharing, needs, the role of the paediatric nurse in care and specifics in the area of self-care. The practical part and the objectives are focused on the specifics of care in the home environment, the needs of children with autism spectrum disorders and also how the paediatric nurse participates in the care. A qualitative research method was used to conduct the research using semi-structured interviews with eight mothers and two paediatric nurses. The interviews were recorded anonymously on a dictaphone and then transcribed into written form. The survey results were coded using the "pencil and paper" method, and nine categories and several subcategories were subsequently created. Specifically, the following categories were created: Diagnosis, Information Resources about Care, Care in the Home Environment, Homesharing, Reactions to Change and Strangers, Communication, Needs, Specifics of Care in the Home Environment and Paediatric Nurse and Care for a Child with ASD. The results are divided into well-arranged charts and diagrams The research showed that the care of children with ASD in the home environment is individual and often demanding. Mothers also reported that they were not satisfied with the information about home care because no one talked to them about this issue. The most common problem is self-care because most children with ASD need help with everything, whether it is dressing, eating, going to the toilet or hygiene. Another specificity in the care is hypersensitivity, for example to various colours, shapes or materials. Communication with these children is also very hard, as they communicate especially in a non-verbal or visual way through the use of special objects. Also the observance of rituals before sleeping or eating is very specific for children with ASD. The children with ASD have biological, social and psychological needs. In many cases, however, these children with ASD do not feel the biological needs, so their parents have to look after them. The paediatric nurses participate in the care by educating the parents and trying to support them in whatever is needed. If a child with ASD visits a General practitioner's surgery for children and adolescents or a dentist's surgery, the nurse should always try to respect the child's rituals.
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