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Home nursing care and outpatient about children with cystic fibrosis
LONGÍNOVÁ, Ilona
Home and outpatient nursing care about children suffering cystic fibrosis Cystic fibrosis is a serious autosomally recessive disease in European population. The disease affects lungs and the digestive system. Complex medical procedures have started to develop recently which improve the prognosis. Surrounding factors are also very important age, infection, nutrition, quality of medical and nursing care and above all, quality of home nursing care. CF is treatable today, nevertheless even with maximum care, using all available methods and processes, which modern medicine offers, it is unfortunately not curable. The task for modern medicine is mainly to reduce problems caused by this disease and to prevent worsening the problems. Care about breathing tubes is very important, as well as good nutrition, repression of infection and inflammation and treating complications. Nursing care about a child suffering cystic fibrosis is a topic including many problems it includes medicine, mental and social aspects. Parents and a team of specialists from an ambulance of cystic fibrosis are very important and their role of taking care about a diseased child is irreplaceable. The specialists, using their professional knowledge, help the parents to take care about the child well and at the same time react positively to the child´s needs. Their role of educating the parents and whole family is also irreplaceable. The mother or parents need someone to demonstrate specialized care of the child and to be able to try it themselves. They need support. In case the mother or parents and medical staff manage to cooperate well, we can reach requested results and satisfaction can be found on both sides.
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