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The role of the nurse in providing care to a patient with apalic syndrome.
ČASTORALOVÁ, Veronika
The aim of this bachelor work was to describe the role of the nurse providing care to a patient with apalic syndrome. Three research questions were based on this aim: "What nursing problems do the nurses deal with while taking care of a patient with apalic syndrome?" "What specific procedures do the nurses carry out providing care to a patient with apalic syndrome?" and "What are nurses's attitudes to ethical questions connected with the care of a patient with apalic syndrome?" The empirical part of the work was elaborated by qaualitative research method. The method was carried out by semi-structured interview. The keystone for making this interview (Attachment 1) consisted of 24 open questions which were, if necessary, extended by additional questions. The individual questions were aimed at the care of the patients with apalic syndrome, at rehabilitation and at communication with these patients and at ethical questions connected with this syndrome. The research was carried out with 9 nurses who work with the patients in vegetative state. The interviews were then processed by the method of priori coding, the technique - "pencil - paper". The research results were divided into categories and subcategories for better organization. These categories which were chosen according to the specific topics describe the individual spheres of the care of patients with apalic syndrome in the broad sense of consequences including cooperation with the patient's family and ethical problematics. The results of the work provide a complex perspective of the problematics dealing with care of the apalic patients from the nurses's point of view. That is why they can be used as studying material for students, nurses and families of the apalic patients and also for anybody who is interested in the given problematics.
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Problems with the dismission of patients in a vegetative state to home care
VRÁNOVÁ, Magdaléna
The aim of this thesis is to inform in detail about the latest clinical and nursing practice trends concerning the needs of patients in vegetative state and their carers. It also deals with relations in the system of long-term nursing care, providing medical and social services and rehabilitation. It also tries to point out the most pressing problems of the current situation of patients in vegetative state and their families, especially in terms of patient discharge to home care and availability of services specified for this target group. The latest findings and proven methods will be summarized in a simple and understandable form, which will serve as a guide both for health professionals and caregivers.For this thesis the Review and synthesis method will be used. The overview of current knowledge and studies in the field of care for patients in vegetative state will be synthesized and focused on home care with recommendations for practice and indications of weak spots.Long-term follow-up nursing and rehabilitative care is necessary for these patients. A special chapter is focused on the specific needs of patients in vegetative state and appropriate nursing care, rehabilitation and release issues. The fundamental part is the consistency of formal and informal care, caregiver preparation for their future role and related socio-economic issues. In conclusion the legal and ethical aspects of the whole field are mentioned regarding medical and nursing care of patients in vegetative state.In line with the objective of this thesis a manual will be created for potential informal carers on how to care for their loved ones, where to go in the case of emergency and what steps to take during the intermediate stage of institutional and home care. The results can be used for further exploration and as an additional source of information for health professionals.
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