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Caring for a patient with a disease of systemic connective tissue.
BAUEROVÁ, Eliška
The aim of this Bachelor Thesis is to find out what are the specifics of nursing care of a patient suffering from systemic connective tissue disease, and the specific needs of the patient. These goals were met by qualitative research.The data collection technique was semi-structured interviews with patients with systemic lupus erythematosus.This disease is one of the most prominent representatives of the group of systemic connective tissue diseases.The research part of the Bachelor Thesis has revealed how the disease started in patients, what the symptoms are now, what is the impact on the patient's psyche, the family approach to the illness, and also how the patients were hospitalized.These responses identified the specifics of nursing care of patients with systemic connective tissue disease.This specificity lies primarily in the focus of the nursing staff on the patient's pain, his or her tolerance to it and assessment. The research also reveals that the nurse should focus on assessing the patient's mobility and also on areas where the patient needs to be educated.Patients with this disease have a number of specific needs that the nurse should focus on.This is primarily the need to be painless. These patients also need enough sleep and rest. For the patients it is also important to avoid stressful situations, because stress often invokes and worsens symptoms of the illness.In addition, it has been found that the illness brings a number of constraints to patients' lives that patients need to learn to live with.It has also been found how much are the nurses informed about the disease according to the patients responses.In some departments, the nurses do know the issue of the disease, and in some other departments the nurses are not informed about it on sucha high level.This bachelor thesis could raise awareness of this disease among healthcare professionals and also improve the quality of care for patients with this disease.
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Nursing care of patients with systemic connective tissue disease - lupus erythematosus
KAAS, Jiří
Lupus erythematosus is a chronic disease that is classified as a systemic or diffuse connective tissue disease. This is an autoimmune inflammatory disease which may affect virtually any organ of the human body. The nature of the disease lies in the increased activity of B cells that produce organ-nonspecific autoantibodies reacting with various structures of cell nuclei. The most frequently affected organs are the joints, skin, heart, kidneys and the central nervous system. The disease is accompanied by a number of clinical manifestations such as fatigue, musculoskeletal pain, increased body temperature and other symptoms. For the nurse standing at the bedside of a patient with this disease, the knowledge of different manifestations of the disease and the readiness to provide highly individualized nursing care is important. The aim of this thesis is to determine the specifics of nursing care and the most frequent nursing problems of patients with systemic lupus erythematosus. The empiric part of the thesis was conducted through the qualitative research. The data collection technique was a semi-structured interview, which was practically carried out with ten patients from the South Bohemian and Pilsen regions. Interviews with individual respondents were integrated into case studies. The most interesting data were represented in the form of categorized tables. The results of the research have proved a wide spectrum of patients´ problems and have shown that the disease does not affect only the patients´ physical aspects, but it significantly affects both the psychic and social aspects. Based on the results of the work, a booklet that can be used as an educational or informational material for students of medical disciplines and also for qualified nurses, was created. The booklet is supposed to provide a comprehensive view on patients suffering from this disease.
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